News

This week, the European Society of Cardiology (ESC) and European Association for Cardio-Thoracic Surgery (EACTS) released the 2021 revisions to their clinical practice guidelines for the management of valvular heart disease.

On September 12th, Cameron will run the Brighton Marathon to raise awareness of heart valve disease and raise money for Heart Valve Voice. Cameron is running for his dad, Phill, and the millions of people affected by heart valve disease in the UK. After Phill was diagnosed with the condition in 2019, heart valve disease has had a huge impact on Cameron and his family, and he now wants to raise money to educate others about the condition.

International Heart Valve Disease Awareness Week 2021 is one month away, and we need your support to make this the biggest Awareness Week ever!

Heart Valve Voice is delighted to announce the addition of three new members to our Board of Trustees. Professor, Simon Ray, Livvy Gosney and Phillip Read.

Since the inception of Heart Valve Voice, it has always been our intention to be a charity that promotes awareness of the condition, give a voice to those who have experienced it and improve the structures that determine the quality of care that patients in the UK receive. We have worked with policymakers throughout the past six years. Still, forming an All-Party Parliamentary Group for Heart Valve Disease was a watershed moment for heart valve disease patients in the UK. The report they have now published is a platform for policy change. 

Earlier this year, a group of heart valve disease patients were asked by the All-Party Parliamentary Group for Heart Valve Disease to share their experiences of valve disease treatment with the group. During the evidence session, the patients were asked about detection and diagnosis of the condition, as well as access to treatment and the information they were provided with. Angie Martin was invited to share her experince, after being diagnosed with heart valve disease as a child and treated during the Covid outbreak