This year, Heart Valve Voice will be supporting the Welsh Government and NHS to improve the detection, diagnosis and treatment of the condition in Wales, and we need your help to put heart valve disease patients at the heart of it.
As part of the redesign of services in Wales, senior NHS decision-makers have asked Heart Valve Voice and our patient community to be a part of a Patient Committee that will share the good and bad details of their experience and help improve the care for the future patients.
The Patient Committee will be asked to attend virtual meetings, participate in focus groups and online questionnaires, and talk to clinicians, policymakers and other patients about their heart valve disease experience.
Patient experience is a powerful tool for affecting change, and by supporting this project you can use your heart valve disease experience to help others. Throughout the process, you will have the support of the team at Heart Valve Voice and your fellow patient advocates.
Training will be provided by Heart Valve Voice to ensure you feel comfortable and confident. The committee will meet for one hour once every quarter, as well as be invited to in person events and have opportunities to discuss their stories in local and national media.
If you want to get involved, fill out the form below and be a part of changing heart valve disease care in Wales for the better!