About Heart Valve Voice

Heart Valve Voice is the UK’s dedicated heart valve disease charity. Established in 2014 and inspired by heart valve disease patient Lydia Monk, we work with patients and clinicians to help increase the awareness of heart valve disease in the UK and improve diagnosis and treatment.

Heart valve disease affects over 1.5 million people over the age of 65 in the UK and while there have been many advancements in the treatment of this disease the unfortunate fact is that far too many people are not being diagnosed and treated early enough. We aim to ensure that more of the population is aware of the importance of having their heart checked for heart valve disease, which can often be detected through a simple stethoscope check. With increased awareness, we hope to see many more heart valve disease patients get the treatment they need to go on to live full and happy lives.

We are a patient-led organisation, with the lived experience of thousands of heart patients and their families at the core of what we do. Through the power of the lived experience of our patient community, we work with clinicians, policymakers and industry to to improve the detection, diagnosis and treatment of heart valve disease for future patients.