European Heart Valve Disease Awareness Day
London, September 8, 2018 – The very first European Heart Valve Disease Awareness Day was celebrated across Europe on the 8th September. We held our UK event at the London ExCel Centre as part of the lead up to PCR London Valves, world's largest educational meeting dedicated to the field of valvular heart disease.
The awareness day event saw 70 guests attend including patients, their family members, clinicians and supporters of Heart Valve Voice. The attendees heard talks from clinicians who all specialise in heart valve disease care covering topics such as the history of heart valve disease, its prevalence, treatment options, access to treatment and the importance of the patient voice. We also heard from two of our patient ambassadors, Pat Khan and Marina McGrath who shared their experience with valve disease and how they have been exemplifying the power of positive ageing since their treatment.
Guests were given plenty of opportunity to mingle with one another allowing for interesting discussions between patients and clinicians. In addition to the presentations, Heart Valve Voice took the opportunity to introduce two of our new patient resources.
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Heart Valve Voice - Overview
We're committed to developing engaging campaigns which help to increase awareness of heart valve disease!
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Latest News - What's new at Heart Valve Voice
The very first European Heart Valve Disease Awareness Day was celebrated across Europe on the 8th September. We held our UK event at the London ExCel Centre as part of the lead up to PCR London Valves, world's largest educational meeting dedicated to the field of valvular heart disease.
Patient Updates - What's new at Heart Valve Voice
Introducing two more of our Patient Portraits: A New You patient ambassadors. Find out more about the competition here: https://heartvalvevoice.com/photo-competition
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Latest News - What's new at Heart Valve Voice
Ahead of the first ever European Heart Valve Disease Awareness Day the European partner organisations involved will be presenting their European Heart Valve Disease Partnership Manifesto outlining the the core calls to action of the initiative.
Patient Updates - What's new at Heart Valve Voice
As the second half of our photography competition is well under way, we thought it would be great to introduce you to the patients who will be the focus of our winning photographers photographic documentary. The documentaries will depict what life is like after heart valve disease treatment and will show our patients living their best life since their recovery.
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Latest News - What's new at Heart Valve Voice
Today CEO Wil Woan has been visiting the Heart Centre at Royal Stoke University Hospital to meet with the Cardiac Team. He also presented at the monthly cardiac team meeting to introduce the work of Heart Valve Voice and explain to the team how they can get involved.
Patient Updates - What's new at Heart Valve Voice
This time last year, Marina had never even heard of Heart Valve Voice. Now one year on she is a valued member of our Patient Action Group, she’s represented patients in a Medical Technology Group briefing with Professor Huon Gray, NHS National Clinical Director for Heart Disease, she has climbed to the top of St Paul’s Cathedral and is has now signed up as a member of our Heart Valve Voice Cycle Team!