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14 September 2020

Today marks the start of Heart Valve Disease Awareness Week 2020, a week where our partners on the Global Heart Hubs’ Valve Disease Patient Council come together to raise awareness of this common, serious, but treatable condition.

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26 February 2021

During the first national lockdown in 2020, Maisie Weir noticed herself getting breathless while walking in the Yorkshire hills with her friend. After being urged to see her doctor by her friend and her husband, Iain, Maisie was diagnosed with severe aortic valve stenosis and told she required urgent intervention. In January 2021, and despite the pressures COVID placed on the health service, Maisie received her life-saving treatment.

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16 February 2021

At the beginning of February, Heart Valve Voice launched our 100,000 Conversations campaign. We aim to start 100,000 conversations about the signs and symptoms of heart valve disease - and start a national conversation about this common, serious, but treatable condition.

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12 February 2021

In 2020, during the first national lockdown, Jonathan Toms, 44, began to feel out of breath while out walking with his friend. Just a few months later, Jonathan was struggling to tie his shoe laces and, after a trip to A&E, was diagnosed with aortic stenosis. Thanks to the Mr Bahrami, the team at Royal Brompton and his wife, Julie, and two sons, Charlie and Alfie, Jonathan received his life saving valve disease treatment and is now on the road to recovery.

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01 February 2021

We need to talk about heart valve disease. In 2021 Heart Valve Voice has pledged to start 100,000 conversations about the signs and symptoms of heart valve disease, because the more we talk about the condition, the more lives we save.

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29 January 2021

In 2019, 57-year-old Derrick Johns found out he had a heart murmur. After further tests, he was diagnosed with aortic stenosis with a bicuspid aortic valve. A keen cyclist, Derrick had experienced no symptoms. However, his valve disease began to deteriorate, and he required urgent intervention. Despite the pressure COVID-19 has placed on the health service and delays to his surgery, Derrick received has now recieved life-saving treatment and is now looking forward to the rest of his life.

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21 January 2021

After experiencing a heart emergency late night one, Joyce called an ambulance and was rushed to hospital where she was diagnosed with heart failure and severe mitral valve regurgitation. Joyce was rushed to Harefield Hospital, where Dr Rob Smith used an innovative treatment which clips the mitral valve, saving her life and getting her back to her beloved husband Jim. This is Joyce's story.

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14 December 2020

Heart Valve Voice are delighted to announce the formation of the All-Party Parliamentary Group on Heart Valve Disease, which Heart Valve Voice will be acting as secretariat for.

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10 December 2020

Heart valve disease is a serious cardiovascular condition which can be fatal if left untreated. Following on from our Heart Health Survey, Global Heart Hub’s Heart Valve Disease Patient Council has partnered with The Health Policy Partnership, an independent health policy research organisation, to develop a report aiming to raise stakeholder awareness of heart valve disease across Europe.

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08 December 2020

Heart Valve Voice’s new partnership with the UK Valve For Life initiative could not have come at a more critical time for valve disease patients, according to CEO, Wil Woan. The initiative is run by the European Association of Percutaneous Cardiovascular Interventions (EAPCI), and will be promoting transcatheter valve interventions, which could be crucial in rapidly reducing the waiting lists built up during the COVID-19 crisis.

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04 December 2020

COVID-19 has placed a huge strain on the NHS and led to the delay of thousands of appointments and heart valve disease treatments. But behind every number is a story, and this is the story of Patient 428. All individual's identities have been kept anonymous.

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