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01 February 2021

We need to talk about heart valve disease. In 2021 Heart Valve Voice has pledged to start 100,000 conversations about the signs and symptoms of heart valve disease, because the more we talk about the condition, the more lives we save.

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16 May 2022

Last week, Heart Valve Voice were in Belfast for the Society for Cardiothoracic Surgery (SCTS) Annual Meeting. We met with clinicians from across the UK, industry leaders and patients to listen, learn and share.

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06 May 2022

At the beginning of 2021, Fireman, Joe Munro, had just set himself a challenge to run 5 kilometres every day. Then, after feeling unwell at work one day, his GP listened to his heart and heard a murmur. A subsequent echo found he had severe aortic stenosis, and required urgent intervention. Now, just a year later, he is back at work with his watch, fighting fires and saving lives.

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22 April 2022

As a part of the SCTS Annual Meeting 2022, we will be holding a sponsored run, encouraging participants to run 5 km and help raise awareness of cardiovascular diseases.

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14 April 2022

This year, to mark the 20th Anniversary of the first TAVI we will be sharing twenty TAVI stories - one for every year the procedure has been being performed. 85-year-old, Mary Kernick, was diagnosed with heart valve disease while having checks for suspected gall stones. After discussions with her clinician, they decided a TAVI was the best treatment option for her. This is her valve disease story.

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13 April 2022

This year marks 20 years since the first clinical TAVI procedure was performed by Alain Cribbier, and to celebrate this historic milestone, Heart Valve Voice will be sharing 20 TAVI stories throughout the year, one for every year this pioneering procedure has been performed.

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30 March 2022

Heart Valve Voice is delighted to launch our Health Unlocked Online Community. This online community is a space where patients can share their experiences, ask questions and find information and support to help them navigate their pathway.

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25 March 2022

Heart Valve Voice is pleased to announce the launch of our 2022 Photography Competition, ‘Photos from the Heart.’ This competition is an opportunity for anyone affected by heart valve disease to share pictures of what heart valve disease treatment means to them, and help us raise awareness of this common, serious, but treatable condition.

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10 March 2022

In February 2019, Julia was recovering from a viral infection and feeling run down and tired. After her GP listened to her heart with a stethoscope, they discovered she had a significant murmur and a subsequent echo found she had severe aortic stenosis with a bicuspid valve. This is her valve disease story.

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08 March 2022

This year, as part of International Women's Day 2022, we asked our patient advocate, Livvy Gosney, for her thoughts on the unique challenges women face while undergoing heart valve disease treatment. Here is what she said:

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10 February 2022

In December 2020, the Heart Valve Voice team put together our strategy for 2021 and discussed ways to help raise awareness of valve disease. In our discussions, we spoke about how people had come together to support one another during the pandemic, help people they didn’t know, and make sacrifices that would save the lives of people they probably would never meet. The way our communities came together was the inspiration behind our 100,000 Conversations campaign. 

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