As a patient-centred charity advocates are our lifeblood. Raising awareness of heart valve disease is our central aim, and our advocates are our most powerful resource in that pursuit.
Heart Valve Voice Campaigns
- Patient Advocate Group
- Heart Valve Voice Photography Competition: Photos from the Heart
- Email Your Local MP
- Heart Valve Disease in Wales
- Heart Valve Disease in Northern Ireland
- NICE Guidelines Patient Consultation Group Response
- Events and Fundraising
- Your Heart Matters - London
- Heart Valve Voice National Patient Day
- Heart Valve Voice Lottery - Start Playing Today
What is an Advocate?
Being an advocate for Heart Valve Voice can be as simple as talking to your friends about the signs and symptoms of heart valve disease. Advocacy at it's core is promoting a cause and for Heart Valve Voice that means raising awareness. An Advocate can be a patient, family member, friend, carer or healthcare professional who shares our passion to transform the way people with heart valve disease are treated. The ways in which an Advocate can get involved include dealing with local media and political stakeholders, supporting community events, liaising with patients and posting on social media.
Heart Valve Voice Advocates work to promote awareness of heart valve disease and advise us on the information and advice patients and their families need.
What Can I Do?
There are many ways in which you can be an advocate, it can be as simple as sharing social media posts, talking to local media or promoting the signs and symptoms of heart valve disease at events.
You could also
- Tell your story
- Join our Patient Advocate Group
- Be a Heart Valve Voice Healthcare Professional Advocate
As an Advocate, you would receive a monthly email newsletter, providing information about our work, upcoming events and volunteer opportunities, and news from the sector. If you are interested in becoming a Heart Valve Voice Advocate, please email firstname.lastname@example.org and we will be in touch.
"It is clear that there is still a lot more to be done. I think that we as patients need to do as much as we can to push the agenda along and make sure each experience is used as a vehicle for future change" - Heart Valve Voice Advocate Pat Khan