Heart Valve Voice Celebrates Milestone: SLOW Symptom Awareness Video Reaches One Million Views
Heart Valve Voice proudly announces that its educational video "SLOW" has reached an impressive milestone of one million views. The video, launched as part of a broader campaign to raise awareness about heart valve disease, aims to educate the public on recognising key symptoms through the acronym SLOW: Shortness of breath, Lightheadedness on exertion, feeling Older than your years, and [...]
Dr Yassir Javaid: Recognising and Addressing Symptoms of Heart Valve Disease
As a clinician who works across primary and secondary care, I've encountered countless patients whose lives have been significantly impacted by heart valve disease. Recognising the symptoms early on and seeking timely medical attention can make a huge impact in managing this condition effectively and ensuring optimal outcomes. It is essential we empower people with the knowledge and tools to [...]
Dr Madalina Garbi: ‘Guidelines developed for patients with patients’
In England, clinical guidelines are developed by an independent non-departmental public body, the National Institute for Health and Care Excellence (NICE). NICE appoints an independent advisory committee for the guidelines, comprising healthcare professionals as well as lay representatives with lived experience, assisted by teams whose work covers evidence review and support, health economic evaluation, guideline recommendation development and quality assurance. [...]
Angie Martin: ‘Putting Patients at the Heart of the Guidelines’
I was approached by Heart Valve Voice to participate in the NICE Guideline consultation after sharing my heart valve disease story. After my story was first published, I spoke with the team and was keen to get involved in helping support other patients living with valve disease and use my experience to give back, so when they contacted me to [...]
Wil’s Blog – 25 Years of NICE
As we mark 25 years of the National Institute for Health and Care Excellence (NICE), I wanted to take a moment to reflect on the impact of its Guideline for ‘Heart valve disease presenting in adults: investigation and management’ published in 2021. Heart Valve Voice’s journey to the final guideline started in 2016 in the Churchill Rooms in Westminster. We [...]
Heart Valve Voice wins Global Cardiovascular Award
Heart Valve Voice is pleased to announce that we were awarded the Global Cardiovascular Award for Best Public Awareness Campaign at a ceremony in London last night. The award was in honour of our 2023 campaigning, which saw us promote awareness of heart valve disease to millions across the UK, as well as offer thousands an opportunity for a heart check. [...]
Dr Clare Appleby: Addressing the Gendered Image of Cardiovascular Disease: A Call for Awareness and Action
In the realm of healthcare, the perception of cardiovascular disease (CVD) often conjures images of middle-aged men clutching their chests. However, this image overlooks a critical reality: women are equally susceptible to cardiovascular disease, yet their symptoms are often under-investigated, under-diagnosed and under-treated in comparison. As a society, it is imperative to dispel the gendered myths shrouding CVD and recognise [...]
Marina McGrath Completes 190 mile Heart Month Walk
In a testament to her determination, Marina McGrath, a passionate advocate for Heart Valve Voice, marked the end of her remarkable fundraising walk today, leaving a trail of inspiration in her wake. The conclusion of Marina's journey not only marks her personal triumph but is also a symbol of the power of positive ageing and life after heart valve disease [...]
Heart Valve Voice Welcomes First Patient Chairman
In a landmark moment for the heart valve disease community, Heart Valve Voice proudly announces the election of its new Chairman of the Board of Trustees, Phill Read. With an unmatched determination to support patients, and a profound understanding of the challenges faced by patients, Phill marks a significant milestone as the first patient to lead the Charity’s Board. Heart [...]
Professor Huon Gray CBE: A Decade of Progress in Tackling Heart Valve Disease
As a ‘mostly retired’ Cardiologist, I find myself reflecting on heart valve disease (HVD) and the changes related to it that have occurred over the past decade. Whilst well recognised by specialists for many decades, levels of awareness of HVD in the general population has been low, with detection and diagnosis often occurring late, making treatment less effective. However, I [...]
