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1402, 2024

Professor Huon Gray CBE: A Decade of Progress in Tackling Heart Valve Disease

14 February 2024|Categories: Blog, News|

As a ‘mostly retired’ Cardiologist, I find myself reflecting on heart valve disease (HVD) and the changes related to it that have occurred over the past decade. Whilst well recognised by specialists for many decades, levels of awareness of HVD in the general population has been low, with detection and diagnosis often occurring late, making treatment less effective. However, I am pleased to see that awareness of these conditions is at last improving, and there is the prospect of more people who are currently undetected being diagnosed and referred for specialist care. There is still a long way to go, [...]

702, 2024

Wil’s Heart Month Blog – Fostering a Cultural Shift Towards Prioritising Cardiovascular Health

7 February 2024|Categories: Blog, News|

Heart disease claims millions of lives each year around the world, and the impact on individuals, families, and communities is immeasurable. Heart Month shines a spotlight on heart disease, and looks at how we can promote awareness of the disease and save lives in the future. While heart valve disease is a serious condition, it is treatable - and better symptom awareness brings earlier detection and better outcomes. Raising awareness is the cornerstone of our efforts to empower individuals with knowledge, encouraging proactive steps towards owning their heart health. Awareness is not just about knowing the statistics; it's about fostering [...]

502, 2024

Heart Valve Voice Chairman Professor Simon Ray Steps Down

5 February 2024|Categories: News|

In a bittersweet moment for Heart Valve Voice, we announce the departure of our esteemed Chairman, Professor Simon Ray, as he embarks on a new and exciting chapter in his professional journey as National Clinical Director for Heart Disease. Professor Ray, who has been an integral part of our organisation for two years, has played a pivotal role in shaping the trajectory of our charitable initiatives. As he moves on to embrace a new role, we take a moment to reflect on his impactful leadership and the indelible mark he leaves on Heart Valve Voice - and to thank him [...]

102, 2024

Heart Valve Voice Launches New Know Your Heart Campaign

1 February 2024|Categories: News|

This Heart Month, Heart Valve Voice launch our new Know Your Heart campaign, an educational campaign that will offer knowledge and insight into all aspects of a patient's heart valve disease journey. This campaign will see Heart Valve Voice look in depth at different aspects of heart valve disease pathway, and bring in voices from across the heart valve disease space to offer education and insight. Starting with awareness, we will bring in the patient perspective, clinical insight from former Clinical Director for Heart Disease, Professor Huon Gray, and our very own Executive Director, Wil Woan. Heart Valve disease is [...]

1801, 2024

Marina’s 2024 Fundraising Mission

18 January 2024|Categories: News|

This year, Heart Valve Voice advocate Marina McGrath has decided to take on a marathon of challenges to mark her 70th birthday and raise money for Heart Valve Voice. Every month until November, Marina will take on a different challenge to highlight the quality of life after heart valve disease treatment, starting with a 180-mile virtual walk from her home in Sale to the hospital in London where she was treated. Originally treated for aortic stenosis in 2014, Marina encountered complications, which meant she needed a second valve replacement, which she received at Royal Brompton Hospital in 2021. You can [...]

401, 2024

Wil’s Blog – Reflecting on 2023 and Looking Forward to 2024

4 January 2024|Categories: Blog, News|

2023 was a fantastic year at Heart Valve Voice, with the charity going from strength to strength with our awareness work and supporting valve patients and their families. It is a testament to the hard work of the team and our patient advocates that despite the challenges we’ve faced throughout the year we’ve still been able to deliver award-winning campaigns and improve pathways for future patients. Our big push in 2023 from an awareness perspective was our SLOW campaign and the Your Heart Matters events. Our SLOW video, which you can see here, has been viewed over 600,000 on YouTube [...]

812, 2023

Send a Heart Valve Voice E-Card This Holiday Season

8 December 2023|Categories: News|

This festive season, you can support Heart Valve Voice by sending an e-Christmas card via the online platform ‘Don’t send me cards.’ For a donation of your own choosing, you’ll be sent digital copies of your desired cards, which you can then share with friends, family and colleagues. The digital cards allow you to send cards this holiday season via email, WhatsApp or on any social media channels, whilst providing crucial funds for the work that we do. To buy your e-card, simply click the link below, select the cards you wish to send and decide how much you would [...]

3011, 2023

Wil’s Blog – Shared Decision Making

30 November 2023|Categories: Blog, News|

Last week, I was delighted to attend PCR London Valve 2023 with the Heart Valve Voice team and some of our incredible Patient Advocates. This year’s event was particularly special, as it saw the launch of Global Heart Hub’s Shared Decision Making Roadmap, a new resource which aims to improve patient experience for cardiovascular patients worldwide.  PCR London Valve has always been a special conference for Heart Valve Voice. In 2019, we celebrated our 5th birthday there, and every time I attend, I’m reminded of all the advocates who came along that year to celebrate our achievements to that day, [...]

2311, 2023

Heart Valve Voice Hold Shared Decision-Making Patient Engagement Session

23 November 2023|Categories: News|

This week at PCR London Valve, Heart Valve Voice held a Patient Engagement Session with our Patient Advocates to discuss Global Heart Hub's Shared Decision-Making Roadmap. The session looked a the roadmap from a UK perspective, and our advocates explained their experience of shared decision-making and looked at ways we can use the roadmap to improve patient experience in the UK. The meeting was held at PCR London Valve, an event attended by over 3000 cardiovascular specialists worldwide. During the conference, Global Heart Hub released its Shared Decision-Making Roadmap and patient-led document which seeks to promote good shared decision-making. The [...]

2011, 2023

Global Heart Hub Launch Shared Decision Making Roadmap

20 November 2023|Categories: News|

Global Heart Hub (GHH) has partnered with The Health Policy Partnership (HPP) to develop a roadmap to support the implementation of shared decision-making in heart valve disease (HVD). Published to coincide with PCR London Valves 2023, the roadmap has been created to equip patient organisations, patient advocates and healthcare professionals across the world with the knowledge and guidance needed to make shared decision-making a reality in HVD care. Shared decision-making helps people have informed conversations with their healthcare providers, allowing them to choose a treatment option that aligns with their personal values and goals. Currently, shared decision-making is often not [...]

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