About Us
Overview
Trustee Board
The Team
Trustee Meeting Minutes
Patient Ambassadors
Policy Work
Chairman – Phill Read
Phill Read is a partnership manager from a sales and marketing background who was diagnosed with mitral valve disease in October 2020. After 4 years of passionate advocacy work for Heart Valve Voice, Phill was unanimously elected the first patient to lead our Board of Trustees.
Alison Banayoti
Alison received a valve replacement in 2018 and is feeling better than ever. Alison brings a passion for sharing her story and raising awareness of heart valve disease to her role as trustee.
Angie Martin
Angie received her valve replacement in June of 2020. She’s excited to join the Heart Valve Voice Trustee board and to share her experience of the heart valve disease pathway.
Keith Jackson
Keith is a member of The British Cardiac Patients Association. Keith also has a background in patient representation in a number of organisations including ambulance trusts, community health councils, patient forums and hospitals.
Dr Yassir Javaid
Dr Yassir Javaid MA (Cantab) FRCP FRCGP PGDip Cardiology Cardiovascular and Diabetes Lead Nene CCG Primary Care Cardiovascular lead.
Dr Chris Arden
Chris Arden is a General Practitioner with a special interest in cardiovascular disease.
Dr Richard Steeds
Rick Steeds is a Consultant Cardiologist at Birmingham University Hospital Foundation. He specialises in the diagnosis, monitoring and treatment of heart valve disease.
Kerry Pena
Kerry Pena has been the cardiac valve nurse specialist since 2014 at Leeds General Infirmary. She takes pride in managing the daily activities of the structural valve service and ensures that efficient clinical care pathways are delivered in one of the busiest and largest TAVI centres in UK. Her role is highly valued as she is the glue to every moving part of the transcatheter valve service. She believes that strong collaboration and effective communication within the multidisciplinary team is key to ensuring her patient remains the focus in the delivery of care.
Dr Chris Cook
Dr Cook is a Structural Cardiology Consultant practising at The Essex Cardiothoracic Centre, UK. His specialist clinical interest includes the delivery of evidence-based, transformative trans-catheter therapies to patients with high-risk valvular heart disease.
Lauren Deegan
Lauren is a Structural Heart Clinical Nurse Specialist at University Hospitals Coventry and Warwickshire, where she has worked for the past 3 years. Lauren has been a specialist Cardiac nurse since qualifying in 2010 and has worked in cardiac units across the UK supporting heart patients during the treatment pathway.
Craig Tilson
Craig is an experienced business leader with over 25 years of experience in the pharmaceutical and biotechnology sectors. Adept at making strategic value-adding decisions, driving innovation and achieving consistent delivery across a wide range of initiatives. Proficient in all aspects of business operations, financial management, risk evaluation and regulatory adherence.
Policy Work
Overview
Aims and Objectives
Guidelines and Reports
APPG
Clinical Advisory Panel
NICE Guidelines Patient Consultation Group