News and Blog


1005, 2024

Dr Yassir Javaid: Recognising and Addressing Symptoms of Heart Valve Disease

10 May 2024|Categories: Blog, News|

As a clinician who works across primary and secondary care, I've encountered countless patients whose lives have been significantly impacted by heart valve disease. Recognising the symptoms early on and seeking timely medical attention can make a huge impact in managing this condition effectively and ensuring optimal outcomes. It is essential we empower people with the knowledge and tools to recognise symptoms, communicate effectively with their GP, and take proactive steps towards diagnosis and timely treatment. Recognising Symptoms Heart valve disease can manifest in various ways, often depending on the specific valve affected and the severity of the condition. However, [...]

2504, 2024

Dr Madalina Garbi: ‘Guidelines developed for patients with patients’

25 April 2024|Categories: Blog, News|

In England, clinical guidelines are developed by an independent non-departmental public body, the National Institute for Health and Care Excellence (NICE). NICE appoints an independent advisory committee for the guidelines, comprising healthcare professionals as well as lay representatives with lived experience, assisted by teams whose work covers evidence review and support, health economic evaluation, guideline recommendation development and quality assurance. Registered stakeholders with an interest in the guideline topic, or representing people whose practice or care may be affected by the guideline, are consulted on the draft guidelines. NICE guidelines help health professionals deliver the best possible care in the [...]

1904, 2024

Angie Martin: ‘Putting Patients at the Heart of the Guidelines’

19 April 2024|Categories: Blog, News|

I was approached by Heart Valve Voice to participate in the NICE Guideline consultation after sharing my heart valve disease story. After my story was first published, I spoke with the team and was keen to get involved in helping support other patients living with valve disease and use my experience to give back, so when they contacted me to say I could help shape guidelines, I was more than happy to get involved and contribute.  Before the consultation, I worked with the team to understand what parts of my story would be valuable and how I could help support [...]

1204, 2024

Wil’s Blog – 25 Years of NICE

12 April 2024|Categories: Blog, News|

As we mark 25 years of the National Institute for Health and Care Excellence (NICE), I wanted to take a moment to reflect on the impact of its Guideline for ‘Heart valve disease presenting in adults: investigation and management’ published in 2021. Heart Valve Voice’s journey to the final guideline started in 2016 in the Churchill Rooms in Westminster. We were there to launch our Heart Healthy Future report. The then National Clinical Director for Heart Disease, Professor Huon Gray, attended the event. That day, Professor Gray told me that he had instructed NICE to look at the guidelines for [...]

1403, 2024

Dr Clare Appleby: Addressing the Gendered Image of Cardiovascular Disease: A Call for Awareness and Action

14 March 2024|Categories: Blog, News|

In the realm of healthcare, the perception of cardiovascular disease (CVD) often conjures images of middle-aged men clutching their chests. However, this image overlooks a critical reality: women are equally susceptible to cardiovascular disease, yet their symptoms are often under-investigated, under-diagnosed and under-treated in comparison. As a society, it is imperative to dispel the gendered myths shrouding CVD and recognise the profound impact they have on women's health outcomes. In the United Kingdom, CVD remains the leading cause of mortality among women, claiming the lives of approximately 28,000 women annually. Statistics reveal that women are more likely to die within the [...]

1402, 2024

Professor Huon Gray CBE: A Decade of Progress in Tackling Heart Valve Disease

14 February 2024|Categories: Blog, News|

As a ‘mostly retired’ Cardiologist, I find myself reflecting on heart valve disease (HVD) and the changes related to it that have occurred over the past decade. Whilst well recognised by specialists for many decades, levels of awareness of HVD in the general population has been low, with detection and diagnosis often occurring late, making treatment less effective. However, I am pleased to see that awareness of these conditions is at last improving, and there is the prospect of more people who are currently undetected being diagnosed and referred for specialist care. There is still a long way to go, [...]

702, 2024

Wil’s Heart Month Blog – Fostering a Cultural Shift Towards Prioritising Cardiovascular Health

7 February 2024|Categories: Blog, News|

Heart disease claims millions of lives each year around the world, and the impact on individuals, families, and communities is immeasurable. Heart Month shines a spotlight on heart disease, and looks at how we can promote awareness of the disease and save lives in the future. While heart valve disease is a serious condition, it is treatable - and better symptom awareness brings earlier detection and better outcomes. Raising awareness is the cornerstone of our efforts to empower individuals with knowledge, encouraging proactive steps towards owning their heart health. Awareness is not just about knowing the statistics; it's about fostering [...]

401, 2024

Wil’s Blog – Reflecting on 2023 and Looking Forward to 2024

4 January 2024|Categories: Blog, News|

2023 was a fantastic year at Heart Valve Voice, with the charity going from strength to strength with our awareness work and supporting valve patients and their families. It is a testament to the hard work of the team and our patient advocates that despite the challenges we’ve faced throughout the year we’ve still been able to deliver award-winning campaigns and improve pathways for future patients. Our big push in 2023 from an awareness perspective was our SLOW campaign and the Your Heart Matters events. Our SLOW video, which you can see here, has been viewed over 600,000 on YouTube [...]

3011, 2023

Wil’s Blog – Shared Decision Making

30 November 2023|Categories: Blog, News|

Last week, I was delighted to attend PCR London Valve 2023 with the Heart Valve Voice team and some of our incredible Patient Advocates. This year’s event was particularly special, as it saw the launch of Global Heart Hub’s Shared Decision Making Roadmap, a new resource which aims to improve patient experience for cardiovascular patients worldwide.  PCR London Valve has always been a special conference for Heart Valve Voice. In 2019, we celebrated our 5th birthday there, and every time I attend, I’m reminded of all the advocates who came along that year to celebrate our achievements to that day, [...]

1711, 2023

Wil’s Blog – Unite Summit

17 November 2023|Categories: Blog, News|

Last week, I had the pleasure of attending the Global Heart Hub Unite Summit in Barcelona. The Summit brought together patient organisations, patient advocates, clinicians, industry representatives and key opinion leaders from across the cardiovascular space - uniting to share ideas and strategies to deliver early detection and timely diagnosis of cardiovascular disease. Global Heart Hub is a coalition of cardiovascular patient organisations whose mission is to create and unite a global cardiovascular patient community to advocate for the best possible outcomes for people with heart disease. I had the privilege of chairing the Valve Council, where together with other [...]

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