10 March 2022
In February 2019, Julia was recovering from a viral infection and feeling run down and tired. After her GP listened to her heart with a stethoscope, they discovered she had a significant murmur and a subsequent echo found she had severe aortic stenosis with a bicuspid valve. This is her valve disease story.
08 March 2022
This year, as part of International Women's Day 2022, we asked our patient advocate, Livvy Gosney, for her thoughts on the unique challenges women face while undergoing heart valve disease treatment. Here is what she said:
10 February 2022
In December 2020, the Heart Valve Voice team put together our strategy for 2021 and discussed ways to help raise awareness of valve disease. In our discussions, we spoke about how people had come together to support one another during the pandemic, help people they didn’t know, and make sacrifices that would save the lives of people they probably would never meet. The way our communities came together was the inspiration behind our 100,000 Conversations campaign.
31 January 2022
Today marks the 15th anniversary of the UK’s first-ever Transcatheter Aortic Valve Implantation (TAVI) procedure performed at University Hospitals of Leicester NHS Trust by Professor Jan Kovac. What was then viewed as a revolutionary method to treat heart valve disease is now a routine procedure, which is seen to be one of the most significant advances in cardiac disease therapy over the last 30 years.
02 December 2021
Today Heart Valve Voice launch our State of the Nation: Heart Valve Disease in Scotland Report, which looks at the detection, diagnosis and treatment of heart valve disease in Scotland.
26 November 2021
After being born with a hole in her heart, Angie Martin first had open heart surgery when she was a small girl. Fast forward 40 years and Angie's leaky valve began to deteriorate and needed urgent intervention. After being told she needed an operation, a pandemic stopped the world in its tracks. However, despite the pressures on the health service, and thanks to the team's brilliant work at Harefield, Angie received her life-saving treatment.
17 November 2021
Heart Valve Voice is delighted to see today’s publication of NICE’s guideline on heart valve disease presenting in adults. The publication of these guidelines marks is a key moment for Heart Valve Voice, our patient community and future valve disease patients.
07 October 2021
Heart Valve Voice welcomes the announcement from NHS England regarding the creation of 40 Community Diagnostic Centres (CDC). Heart Valve Voice has advocated the delivery of these services since Professor Sir Mike Richards released his report, and are firm believers that they will improve cardiovascular services immeasurably.
28 September 2021
In 2020, retired postman, Lewis Benn was treated for severe aortic stenosis at the beginning of the Covid outbreak. After facing delays to treatment, and with his health deteriorating, Lewis received a non-invasive procedure, and has now made a full recovery and is enjoying a great quality of life after treatment.
13 September 2021
Heart Valve Disease Awareness Week (13-19 September, 2021) aims to improve diagnosis, treatment and management of heart valve disease globally. This international initiative is led by the Valve Council of the Global Heart Hub, and includes heart valve disease charities from around the world.