20 November 2023

Global Heart Hub (GHH) has partnered with The Health Policy Partnership (HPP) to develop a roadmap to support the implementation of shared decision-making in heart valve disease (HVD). Published to coincide with PCR London Valves 2023, the roadmap has been created to equip patient organisations, patient advocates and healthcare professionals across the world with the knowledge and guidance needed to make shared decision-making a reality in HVD care.

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17 November 2023

Last week, I had the pleasure of attending the Global Heart Hub Unite Summit in Barcelona. The Summit brought together patient organisations, patient advocates, clinicians, industry representatives and key opinion leaders from across the cardiovascular space - uniting to share ideas and strategies to deliver early detection and timely diagnosis of cardiovascular disease.

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10 November 2023

Last week, Heart Valve Voice held an Evidence Roundtable on HMS Belfast featuring patients, clinicians, industry representatives and key opinion leaders from the health and patient advocacy space. We were asked to do this by the All-Party Parliamentary Group for Heart Valve Disease, who wanted to understand the current challenges in the patient pathway, as well as the ideas and innovations that can unlock those barriers.

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02 November 2023

This week, Heart Valve Voice hosted a Roundtable on the HMS Belfast to discuss how clinicians, patients and industry professionals can improve the detection, diagnosis and treatment of heart valve disease.

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23 October 2023

Last Friday, the Your Heart Matters bus made its final call in Leeds. Over the past two years, the bus has visited cities and towns across the UK, promoting awareness of the red-flag symptoms of heart valve disease and the importance of stethoscope checks for over 65s.

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22 September 2023

Last week, as part of Heart Valve Disease Awareness Week 2023, Heart Valve Voice and the Greater Manchester Cardiac Network partnered with Manchester Library Services to hold a series of awareness events across the city.

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20 September 2023

On September 12th, Heart Valve Voice visited the Palace of Westminster as part of Heart Valve Disease Awareness Week 2023 in an attempt to raise awareness of heart valve disease. We parked the Your Heart Matters Bus in New Palace Yard and offered stethoscope checks to MPs and staff to highlight the importance of early detection of the disease.

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11 September 2023

Today marks the start of International Heart Valve Disease Awareness Week. A week that aims to improve the global diagnosis, treatment, and management of heart valve disease. The week is celebrated by charities from across the globe, all to promote awareness of the disease, its symptoms and the importance of early detection and timely treatment.

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05 September 2023

All NHS regions should properly consult patients on how to improve outcomes, says the Medical Technology Group in its latest report. Research into the structures, policies and processes of the country’s 42 Integrated Care Systems found that, while there are examples of best practice, 40 percent of them have no formal patient involvement in Board meetings and subcommittees in place.

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04 September 2023

Earlier this year, Clinical Lead for Intervention at Liverpool Heart and Chest Hospital, Dr Clare Appleby, gave a presentation to leading figures in the heart valve disease world about gender inequalities in heart valve disease treatment. Here, Dr Appleby discusses that presentation and looks at how to address inequalities in heart valve disease care.

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