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21 August 2020

In December 2018, 33 year old Support Worker at Autism Together, Jeanine Jones was celebrating the birth of her first daughter, Phoebe. Flash forward four months and she was being raced across Liverpool to Liverpool Heart and Chest Hospital with her heart, lungs, liver, kidneys and brain starting to fail. There, she received her life saving double valve replacement.

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02 December 2021

Today Heart Valve Voice launch our State of the Nation: Heart Valve Disease in Scotland Report, which looks at the detection, diagnosis and treatment of heart valve disease in Scotland.

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26 November 2021

After being born with a hole in her heart, Angie Martin first had open heart surgery when she was a small girl. Fast forward 40 years and Angie's leaky valve began to deteriorate and needed urgent intervention. After being told she needed an operation, a pandemic stopped the world in its tracks. However, despite the pressures on the health service, and thanks to the team's brilliant work at Harefield, Angie received her life-saving treatment.

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17 November 2021

Heart Valve Voice is delighted to see today’s publication of NICE’s guideline on heart valve disease presenting in adults. The publication of these guidelines marks is a key moment for Heart Valve Voice, our patient community and future valve disease patients.

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07 October 2021

Heart Valve Voice welcomes the announcement from NHS England regarding the creation of 40 Community Diagnostic Centres (CDC). Heart Valve Voice has advocated the delivery of these services since Professor Sir Mike Richards released his report, and are firm believers that they will improve cardiovascular services immeasurably.

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17 May 2021

Heart Valve Voice carried out an independent and impartial patient consultation on the NICE Draft guideline on heart valve disease presenting in adults. The process was patient-led and inclusive, with both treated and non-treated patients invited to attend. We recognised that not all patients want to share their experiences openly, so we developed an online survey, alongside an interactive webinar, to allow more patients to participate.

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13 April 2021

Martyn O'Connor first had valve disease surgery to replace his aortic valve 11 years ago. After his valve began to deteriorate, urgent intervention was required, and thanks to the excellent team at Morriston Hospital, Swansea, he was able to receive his life-saving treatment, and was discharged in a matter of days.

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31 March 2021

Covid has placed a huge strain on our NHS and led to delays of thousands of heart valve disease treatments. With an estimated 44,000 cardiac procedures lost already, and an increasing backlog, a group of untreated heart valve disease patients have come together with a simple message - Just Treat Us. Delaying treatment leads to worse outcomes, but with timely treatment patients can get back to a good, even better, quality of life.

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08 March 2021

As part of International Women's Day 2021, we wanted to look at the unique challenges heart valve disease treatment presents women and how treated patients have dealt with those challenges. 

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26 February 2021

During the first national lockdown in 2020, Maisie Weir noticed herself getting breathless while walking in the Yorkshire hills with her friend. After being urged to see her doctor by her friend and her husband, Iain, Maisie was diagnosed with severe aortic valve stenosis and told she required urgent intervention. In January 2021, and despite the pressures COVID placed on the health service, Maisie received her life-saving treatment.

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12 February 2021

In 2020, during the first national lockdown, Jonathan Toms, 44, began to feel out of breath while out walking with his friend. Just a few months later, Jonathan was struggling to tie his shoe laces and, after a trip to A&E, was diagnosed with aortic stenosis. Thanks to the Mr Bahrami, the team at Royal Brompton and his wife, Julie, and two sons, Charlie and Alfie, Jonathan received his life saving valve disease treatment and is now on the road to recovery.

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