13 April 2022
This year marks 20 years since the first clinical TAVI procedure was performed by Alain Cribbier, and to celebrate this historic milestone, Heart Valve Voice will be sharing 20 TAVI stories throughout the year, one for every year this pioneering procedure has been performed.
30 March 2022
Heart Valve Voice is delighted to launch our Health Unlocked Online Community. This online community is a space where patients can share their experiences, ask questions and find information and support to help them navigate their pathway.
25 March 2022
Heart Valve Voice is pleased to announce the launch of our 2022 Photography Competition, ‘Photos from the Heart.’ This competition is an opportunity for anyone affected by heart valve disease to share pictures of what heart valve disease treatment means to them, and help us raise awareness of this common, serious, but treatable condition.
10 March 2022
In February 2019, Julia was recovering from a viral infection and feeling run down and tired. After her GP listened to her heart with a stethoscope, they discovered she had a significant murmur and a subsequent echo found she had severe aortic stenosis with a bicuspid valve. This is her valve disease story.
08 March 2022
This year, as part of International Women's Day 2022, we asked our patient advocate, Livvy Gosney, for her thoughts on the unique challenges women face while undergoing heart valve disease treatment. Here is what she said:
10 February 2022
In December 2020, the Heart Valve Voice team put together our strategy for 2021 and discussed ways to help raise awareness of valve disease. In our discussions, we spoke about how people had come together to support one another during the pandemic, help people they didn’t know, and make sacrifices that would save the lives of people they probably would never meet. The way our communities came together was the inspiration behind our 100,000 Conversations campaign.
31 January 2022
Today marks the 15th anniversary of the UK’s first-ever Transcatheter Aortic Valve Implantation (TAVI) procedure performed at University Hospitals of Leicester NHS Trust by Professor Jan Kovac. What was then viewed as a revolutionary method to treat heart valve disease is now a routine procedure, which is seen to be one of the most significant advances in cardiac disease therapy over the last 30 years.
02 December 2021
Today Heart Valve Voice launch our State of the Nation: Heart Valve Disease in Scotland Report, which looks at the detection, diagnosis and treatment of heart valve disease in Scotland.
26 November 2021
After being born with a hole in her heart, Angie Martin first had open heart surgery when she was a small girl. Fast forward 40 years and Angie's leaky valve began to deteriorate and needed urgent intervention. After being told she needed an operation, a pandemic stopped the world in its tracks. However, despite the pressures on the health service, and thanks to the team's brilliant work at Harefield, Angie received her life-saving treatment.
17 November 2021
Heart Valve Voice is delighted to see today’s publication of NICE’s guideline on heart valve disease presenting in adults. The publication of these guidelines marks is a key moment for Heart Valve Voice, our patient community and future valve disease patients.