03 February 2023
This week, NHS England (NHSE) issued a statement updating guidance on using TAVI to treat severe symptomatic aortic stenosis (AS). In the statement, NHSE confirms that TAVI is an alternative to surgical intervention for patients with severe symptomatic aortic stenosis who are at high surgical risk, and has extended its suitability for those at intermediate or low surgical risk, who meet the detailed inclusion criteria which accompanies the document.
21 April 2023
Earlier this week, I was asked to represent Heart Valve Voice and its patient community at a Westminster Health Forum event on Next Steps for Diagnostics and Medical Devices in England. The event featured stakeholders from across the health space, with policymakers, industry professionals and clinical leaders coming together to share their thoughts and ideas. I was there as a patient to share my experience and talk more broadly about what I have learned from other patients as an advocate for Heart Valve Voice.
14 April 2023
Earlier this month, Clinical Lead for Intervention at Liverpool Heart and Chest Hospital, Dr Clare Appleby, gave a presentation to leading figures in the heart valve disease world about gender inequalities in heart valve disease treatment. Here, Dr Appleby discusses that presentation and looks at how to address inequalities in heart valve disease care.
31 March 2023
In December, a concert was held a few days before Christmas in Rhosygilwen, West Wales, to remember Wyn Lewis, or ‘Wyn the Vet’ as he was known to all. Wyn died of heart valve disease in December 2019, and the evening was held as a celebration of his life.
29 March 2023
Heart Valve Voice is delighted to announce that our 2022 National Education Campaign has won a World Heart Federation Award for Creative Campaign.
28 March 2023
Essex heart patients are the first in the country to benefit from new wearable technology used by hospital staff in a revolutionary procedure.
23 March 2023
On December 7, 2022, the Global Coalition on Aging and the Global Heart Hub convened a cross-sector roundtable of experts from healthcare, patient advocacy, policy organizations, and the private sector to discuss the challenge of heart valve disease in the context of ageing societies and their evolving needs.
17 March 2023
In 2019, at just 33 years old, Stacey Langridge was experiencing severe shortness of breath and swollen ankles. When referred to Weston General Hospital, it was found that she had aortic stenosis, mitral valve disease and endocarditis and needed emergency treatment. Over the next four weeks in the hospital, she had her valves repaired and replaced and antibiotics to treat her endocarditis. Now, she is making a good recovery, adjusting to life after treatment, and looking forward to the future with her family.
08 February 2023
In December, Heart Valve Voice supporter Del, challenged himself to row the distance from Brighton to London and back to raise awareness of heart valve disease and raise money for Heart Valve Voice
26 January 2023
Heart Valve Voice is sad to announce the passing of our fantastic Patient Advocate, Sue Jardine.
24 January 2023
Heart Valve Voice is delighted to mark the end of our campaign to educate half a million over 65s on heart valve disease. In 2022, we committed to teaching 500,000 over 65s about heart valve disease from detection to treatment.