Stories

In 2020, during the first national lockdown, Jonathan Toms, 44, began to feel out of breath while out walking with his friend. Just a few months later, Jonathan was struggling to tie his shoe laces and, after a trip to A&E, was diagnosed with aortic stenosis. Thanks to the Mr Bahrami, the team at Royal Brompton and his wife, Julie, and two sons, Charlie and Alfie, Jonathan received his life saving valve disease treatment and is now on the road to recovery.

In 2019, 57-year-old Derrick Johns found out he had a heart murmur. After further tests, he was diagnosed with aortic stenosis with a bicuspid aortic valve. A keen cyclist, Derrick had experienced no symptoms. However, his valve disease began to deteriorate, and he required urgent intervention. Despite the pressure COVID-19 has placed on the health service and delays to his surgery, Derrick received has now recieved life-saving treatment and is now looking forward to the rest of his life.

COVID-19 has placed a huge strain on the NHS and led to the delay of thousands of appointments and heart valve disease treatments. But behind every number is a story, and this is the story of Patient 753. All patient's identities have been kept anonymous.

“My valve disease story started when I was a child, and I actually found out it was leaking when I had open heart surgery in 1986. So this was actually my second open-heart surgery, as I was born with a hole between the pumping chambers which needed to be operated on. But at that time the valve itself wasn’t causing any problems - it was just something to be kept an eye on.

Birmingham MP, Steve McCabe  was diagnosed with heart valve disease twelve years ago. As with many heart valve disease patients he had not experienced any obvious symptoms.

In December 2018, 33 year old Support Worker at Autism Together, Jeanine Jones was celebrating the birth of her first daughter, Phoebe. Flash forward four months and she was being raced across Liverpool to Liverpool Heart and Chest Hospital with her heart, lungs, liver, kidneys and brain starting to fail. There, she received her life saving double valve replacement.

Gary Russel is a 52-year-old Civil Servant from London. After being diagnosed with heart valve disease in his twenties at a medical to join the Police Force, his valve disease story went on for two decades before he was treated in 2013.

​Elizabeth Slough is a retired member of Brighton's Alzheimer's Society, where she worked in the Carer's Support Department. Liz is an outgoing personality, a dedicated volunteer and a brilliant advert for the power of positive ageing. She has two married stepdaughters and a sister, who shared her heart valve disease story with her. Here is Liz's story.