Professor Huon Gray CBE: A Decade of Progress in Tackling Heart Valve Disease
As a ‘mostly retired’ Cardiologist, I find myself reflecting on heart valve disease (HVD) and the changes related to it that have occurred over the past decade. Whilst well recognised by specialists for many decades, levels of awareness of HVD in the general population has been low, with detection and diagnosis often occurring late, making treatment less effective. However, I [...]
Wil’s Heart Month Blog – Fostering a Cultural Shift Towards Prioritising Cardiovascular Health
Heart disease claims millions of lives each year around the world, and the impact on individuals, families, and communities is immeasurable. Heart Month shines a spotlight on heart disease, and looks at how we can promote awareness of the disease and save lives in the future. While heart valve disease is a serious condition, it is treatable - and better [...]
Heart Valve Voice Chairman Professor Simon Ray Steps Down
In a bittersweet moment for Heart Valve Voice, we announce the departure of our esteemed Chairman, Professor Simon Ray, as he embarks on a new and exciting chapter in his professional journey as National Clinical Director for Heart Disease. Professor Ray, who has been an integral part of our organisation for two years, has played a pivotal role in shaping [...]
Heart Valve Voice Launches New Know Your Heart Campaign
This Heart Month, Heart Valve Voice launch our new Know Your Heart campaign, an educational campaign that will offer knowledge and insight into all aspects of a patient's heart valve disease journey. This campaign will see Heart Valve Voice look in depth at different aspects of heart valve disease pathway, and bring in voices from across the heart valve disease [...]
Marina’s 2024 Fundraising Mission
This year, Heart Valve Voice advocate Marina McGrath has decided to take on a marathon of challenges to mark her 70th birthday and raise money for Heart Valve Voice. Every month until November, Marina will take on a different challenge to highlight the quality of life after heart valve disease treatment, starting with a 180-mile virtual walk from her home [...]
Wil’s Blog – Reflecting on 2023 and Looking Forward to 2024
2023 was a fantastic year at Heart Valve Voice, with the charity going from strength to strength with our awareness work and supporting valve patients and their families. It is a testament to the hard work of the team and our patient advocates that despite the challenges we’ve faced throughout the year we’ve still been able to deliver award-winning campaigns [...]
Send a Heart Valve Voice E-Card This Holiday Season
This festive season, you can support Heart Valve Voice by sending an e-Christmas card via the online platform ‘Don’t send me cards.’ For a donation of your own choosing, you’ll be sent digital copies of your desired cards, which you can then share with friends, family and colleagues. The digital cards allow you to send cards this holiday season via [...]
Wil’s Blog – Shared Decision Making
Last week, I was delighted to attend PCR London Valve 2023 with the Heart Valve Voice team and some of our incredible Patient Advocates. This year’s event was particularly special, as it saw the launch of Global Heart Hub’s Shared Decision Making Roadmap, a new resource which aims to improve patient experience for cardiovascular patients worldwide. PCR London Valve has [...]
Heart Valve Voice Hold Shared Decision-Making Patient Engagement Session
This week at PCR London Valve, Heart Valve Voice held a Patient Engagement Session with our Patient Advocates to discuss Global Heart Hub's Shared Decision-Making Roadmap. The session looked a the roadmap from a UK perspective, and our advocates explained their experience of shared decision-making and looked at ways we can use the roadmap to improve patient experience in the [...]
Global Heart Hub Launch Shared Decision Making Roadmap
Global Heart Hub (GHH) has partnered with The Health Policy Partnership (HPP) to develop a roadmap to support the implementation of shared decision-making in heart valve disease (HVD). Published to coincide with PCR London Valves 2023, the roadmap has been created to equip patient organisations, patient advocates and healthcare professionals across the world with the knowledge and guidance needed to [...]
