News

Earlier this week, I was asked to represent Heart Valve Voice and its patient community at a Westminster Health Forum event on Next Steps for Diagnostics and Medical Devices in England. The event featured stakeholders from across the health space, with policymakers, industry professionals and clinical leaders coming together to share their thoughts and ideas. I was there as a patient to share my experience and talk more broadly about what I have learned from other patients as an advocate for Heart Valve Voice.

This week, NHS England (NHSE) issued a statement updating guidance on using TAVI to treat severe symptomatic aortic stenosis (AS). In the statement, NHSE confirms that TAVI is an alternative to surgical intervention for patients with severe symptomatic aortic stenosis who are at high surgical risk, and has extended its suitability for those at intermediate or low surgical risk, who meet the detailed inclusion criteria which accompanies the document. 

Today, Heart Valve Voice launch our SLOW symptoms awareness campaign. After consulting with patients and clinicians, we are launching a campaign that aims to raise awareness of the red-flag symptoms of heart valve disease and what to do if people experience them.

This year as part of Heart Valve Disease Awareness Week 2022, Heart Valve Voice is taking a petition to 10 Downing Street to ask Government to increase funding for the diagnosis and care of people with severe aortic stenosis.

According to new research, urgent action is needed to clear the backlog of people requiring treatment for aortic stenosis or risk unnecessary loss of life.

Heart Valve Voice is delighted to announce that we have become a member of the World Heart Federation.