01 February 2024
This Heart Month, Heart Valve Voice launch our new Know Your Heart campaign, an educational campaign that will offer knowledge and insight into all aspects of a patients heart valve disease journey.
18 January 2024
This year, Heart Valve Voice advocate Marina McGrath has decided to take on a marathon of challenges to mark her 70th birthday and raise money for Heart Valve Voice. Every month until November, Marina will take on a different challenge to highlight the quality of life after heart valve disease treatment, starting with a 180-mile virtual walk from her home in Sale to the hospital in London where she was treated.
04 January 2024
2023 was a fantastic year at Heart Valve Voice, with the charity going from strength to strength with our awareness work and supporting valve patients and their families. It is a testament to the hard work of the team and our patient advocates that despite the challenges we’ve faced throughout the year we’ve still been able to deliver award-winning campaigns and improve pathways for future patients.
08 December 2023
This festive season you can support Heart Valve Voice by sending an e-Christmas card via the online platform ‘Don’t send me cards.’ For a donation of your own choosing you’ll be sent digital copies of your desired cards, which you can then share with friends, family and colleagues.
30 November 2023
Last week, I was delighted to attend PCR London Valve 2023 with the Heart Valve Voice team and some of our incredible Patient Advocates. This year’s event was particularly special, as it saw the launch of Global Heart Hub’s Shared Decision Making Roadmap, a new resource which aims to improve patient experience for cardiovascular patients worldwide.
23 November 2023
This week at PCR London Valve, Heart Valve Voice held a Patient Engagement Session with our Patient Advocates to discuss Global Heart Hub's Shared Decision-Making Roadmap. The session looked a the roadmap from a UK perspective, and our advocates explained their experience of shared decision-making and looked at ways we can use the roadmap to improve patient experience in the UK.
20 November 2023
Global Heart Hub (GHH) has partnered with The Health Policy Partnership (HPP) to develop a roadmap to support the implementation of shared decision-making in heart valve disease (HVD). Published to coincide with PCR London Valves 2023, the roadmap has been created to equip patient organisations, patient advocates and healthcare professionals across the world with the knowledge and guidance needed to make shared decision-making a reality in HVD care.
17 November 2023
Last week, I had the pleasure of attending the Global Heart Hub Unite Summit in Barcelona. The Summit brought together patient organisations, patient advocates, clinicians, industry representatives and key opinion leaders from across the cardiovascular space - uniting to share ideas and strategies to deliver early detection and timely diagnosis of cardiovascular disease.
10 November 2023
Last week, Heart Valve Voice held an Evidence Roundtable on HMS Belfast featuring patients, clinicians, industry representatives and key opinion leaders from the health and patient advocacy space. We were asked to do this by the All-Party Parliamentary Group for Heart Valve Disease, who wanted to understand the current challenges in the patient pathway, as well as the ideas and innovations that can unlock those barriers.
02 November 2023
This week, Heart Valve Voice hosted a Roundtable on the HMS Belfast to discuss how clinicians, patients and industry professionals can improve the detection, diagnosis and treatment of heart valve disease.