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Amplify our Voices!

Amplify Our Voices!

Help us change the conversation about heart valve disease.

Give your voice to our campaign. We are not asking for financial donations, or even active time commitment, simply support.


Take a look at other people's voices and get sharing, tweeting and speading the word!

It's more important than ever that our voices are heard. The more we listen, the more lives we save!

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Trending Voices...

 
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Amanda Bott, London, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

If more people received an annual stethoscope check, I believe the number of people requiring emergency valve surgery would reduce. I also believe that if we pick up the disease earlier we can manage their treatment pathway more effectively and surgery can be planned at the optimum time for them.


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Voice Added: 18 Jan 2018


ShareShare on LinkedIn 171
397 Amplified this voice.

David.Gower

David Gower, South East, United Kingdom

I give my voice because...

I want to see an annual stethoscope test introduced for all over 65s

As a former professional sportsman, I know that the regular check ups are important to help us have an active life. Hearing that a simple, stethoscope test can pick up early signs of heart valve disease, I really want to see more people getting this as a standard.


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Voice Added: 18 Jan 2018


ShareShare on LinkedIn 214
378 Amplified this voice.

Keith.Jackson

Keith Jackson, West Midlands, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Through my work at the British Cardiac Patients Association and as Trustee at Heart Valve Voice, I know the importance of early detection of heart valve disease. Helping people to become more aware of symptoms and encouraging them to ask questions will assist in getting their treatment started early and to avoid crisis.


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Voice Added: 18 Jan 2018


ShareShare on LinkedIn 189
357 Amplified this voice.

Gregg.Hutchings

Gregg Hutchings, London, United Kingdom

I give my voice because...

I think there needs to be improved guidelines for treatment of heart valve disease

The variations in treatment of heart valve disease aren't acceptable. We need to do something about it!

Voice Added: 18 Jan 2018


ShareShare on LinkedIn 172
352 Amplified this voice.

David.Lloyd

David Lloyd, North West, United Kingdom

I give my voice because...

I want to see an annual stethoscope test introduced for all over 65s

As a former professional sportsman, I know that the regular check ups are important to help us have an active life. Hearing that a simple, stethoscope test can pick up early signs of heart valve disease, I really want to see more people getting this as a standard.


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Voice Added: 18 Jan 2018


ShareShare on LinkedIn 185
321 Amplified this voice.

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Michael George, South West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 17 Jan 2018


ShareShare on LinkedIn 92
222 Amplified this voice.

Mike.Smith

Mike Smith, North West, United Kingdom

I give my voice because...

I want GPs to have improved access to echocardiography

I want to help

Voice Added: 15 Jan 2018


ShareShare on LinkedIn 99
212 Amplified this voice.

Wil.Woan

Wil Woan, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Let's raise awareness together!

Voice Added: 16 Jan 2018


ShareShare on LinkedIn 100
207 Amplified this voice.

admin

Frank Health, North West, United Kingdom

I give my voice because...

That the variations in treatment across UK and compared to rest of Europe are not acceptable

More people need to know about this.

Voice Added: 18 Jan 2018


ShareShare on LinkedIn 107
203 Amplified this voice.

Christina.Bannister

Christina Bannister, South East, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

I am the Nursing & Allied Health Professional Representative for the Society for Cardiothoracic Surgery in Great Britain and Ireland

Voice Added: 17 Jan 2018


ShareShare on LinkedIn 84
188 Amplified this voice.

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Glenis Wood, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

A quick and simple test can save lives.

Voice Added: 18 Jan 2018


ShareShare on LinkedIn 93
180 Amplified this voice.

Kris.Kendal

Kris Kendal, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 15 Jan 2018


ShareShare on LinkedIn 99
177 Amplified this voice.

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David Sissons, London, United Kingdom

I give my voice because...

I want to see an annual stethoscope test introduced for all over 65s

Voice Added: 15 Jan 2018


ShareShare on LinkedIn 82
176 Amplified this voice.

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Juliet Leighton-Jones, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 15 Jan 2018


ShareShare on LinkedIn 90
175 Amplified this voice.

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Rueben Cumberbatch, London, United Kingdom

I give my voice because...

I think there needs to be improved guidelines for treatment of heart valve disease

Voice Added: 16 Jan 2018


ShareShare on LinkedIn 84
174 Amplified this voice.

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Sally Woan, North West, United Kingdom

I give my voice because...

I want GPs to have improved access to echocardiography

Voice Added: 11 Jan 2018


ShareShare on LinkedIn 76
173 Amplified this voice.

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Jason Burgess, North West, United Kingdom

I give my voice because...

The variations in treatment across UK, and comparison to the rest of Europe, are not acceptable.

We need to do something to help get this cause the attention it deserves.

Voice Added: 16 Jan 2018


ShareShare on LinkedIn 94
171 Amplified this voice.

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Ivor Kirkwood, London, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 16 Jan 2018


ShareShare on LinkedIn 90
170 Amplified this voice.

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Janette Woan, North West, United Kingdom

I give my voice because...

I want to see an annual stethoscope test introduced for all over 65s

Voice Added: 11 Jan 2018


ShareShare on LinkedIn 98
166 Amplified this voice.

Stephanie.Bunten

Stephanie Bunten, London, United Kingdom

I give my voice because...

I think there needs to be improved guidelines for treatment of heart valve disease

So easy to detect with a stethoscope check - let's raise awareness for this very common, but treatable disease

Voice Added: 13 Jan 2018


ShareShare on LinkedIn 99
166 Amplified this voice.

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Holly Dutton, North West, United Kingdom

I give my voice because...

I want to see an annual stethoscope test introduced for all over 65s

Voice Added: 18 Jan 2018


ShareShare on LinkedIn 79
165 Amplified this voice.

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David Wood, North West, United Kingdom

I give my voice because...

I want GPs to have improved access to echocardiography

Voice Added: 15 Jan 2018


ShareShare on LinkedIn 84
163 Amplified this voice.

Chris.Young

Chris Young, London, United Kingdom

I give my voice because...

I want to see an annual stethoscope test introduced for all over 65s

If more people received an annual stethoscope tests, I believe the number of emergency and crisis treatments which I perform would drop. Also I believe that if we pick up the disease earlier we can manage the treatment pathway more effectively.


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Voice Added: 17 Jan 2018


ShareShare on LinkedIn 91
162 Amplified this voice.

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Linda Wood, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 17 Jan 2018


ShareShare on LinkedIn 87
159 Amplified this voice.

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Sarah Gilford, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 17 Jan 2018


ShareShare on LinkedIn 84
159 Amplified this voice.

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Rory McKean, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 15 Jan 2018


ShareShare on LinkedIn 84
159 Amplified this voice.

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Clive Betteridge, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 18 Jan 2018


ShareShare on LinkedIn 89
159 Amplified this voice.

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Jim Gray, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 18 Jan 2018


ShareShare on LinkedIn 85
159 Amplified this voice.

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Lee-Ann Cameron, London, United Kingdom

I give my voice because...

I want to see an annual stethoscope test introduced for all over 65s

Voice Added: 15 Jan 2018


ShareShare on LinkedIn 82
158 Amplified this voice.

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Barry Matthews, North West, United Kingdom

I give my voice because...

I want to see an annual stethoscope test introduced for all over 65s

More people need to tested at

Voice Added: 13 Jan 2018


ShareShare on LinkedIn 91
158 Amplified this voice.

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Roger Hutchings, North West, United Kingdom

I give my voice because...

I want GPs to have improved access to echocardiography

As heart valve disease is a hidden killer far more needs to be done in terms of preventive monitoring as opposed to too late treatment

Voice Added: 18 Jan 2018


ShareShare on LinkedIn 81
156 Amplified this voice.

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Martin Kelly, Outside UK

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 16 Jan 2018


ShareShare on LinkedIn 82
156 Amplified this voice.

Gregg.Hutchings1

Gregg Hutchings, London, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 18 Jan 2018


ShareShare on LinkedIn 88
154 Amplified this voice.

Pat.Khan

Pat Khan, North West, United Kingdom

I give my voice because...

I want GPs to have improved access to echocardiography

As a patient who has received treatment, I know how important my surgery was to improving my life. My GP picked up the murmur and was able to get my treatment pathway started. I want to make sure that all GPs have access to adequate levels of echo to assist the detection of the heart valve disease.


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Voice Added: 14 Jan 2018


ShareShare on LinkedIn 86
154 Amplified this voice.

Mike.Higginbottom

Mike Higginbottom, Yorkshire and North-East, United Kingdom

I give my voice because...

The variations in treatment across UK and compared to rest of Europe are not acceptable.

The variations in treatment across UK and compared to rest of Europe are not acceptable.

Voice Added: 15 Jan 2018


ShareShare on LinkedIn 88
154 Amplified this voice.

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Nicola Lilley, London, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 18 Jan 2018


ShareShare on LinkedIn 88
154 Amplified this voice.

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Jan Darby , East of England, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Having a mechanical mitral valve since 2008, I think supporting others going through the same operation is helpful

Voice Added: 17 Jan 2018


ShareShare on LinkedIn 80
154 Amplified this voice.

wil.woan1

Wil Woan, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 11 Jan 2018


ShareShare on LinkedIn 91
153 Amplified this voice.

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Frank Smith, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 18 Jan 2018


ShareShare on LinkedIn 85
153 Amplified this voice.

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Kathleen Rogers, Wales, United Kingdom

I give my voice because...

I want to see an annual stethoscope test introduced for all over 65s

One heart look after it

Voice Added: 16 Jan 2018


ShareShare on LinkedIn 79
152 Amplified this voice.

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Gary Monaghan, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 17 Jan 2018


ShareShare on LinkedIn 84
152 Amplified this voice.

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Lynzi Birch , West Midlands, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 11 Jan 2018


ShareShare on LinkedIn 91
151 Amplified this voice.

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Elissa Headford, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 16 Jan 2018


ShareShare on LinkedIn 86
150 Amplified this voice.

admin

Frank Health, North West, United Kingdom

I give my voice because...

I want GPs to have improved access to echocardiography

This could save many lives!

Voice Added: 18 Jan 2018


ShareShare on LinkedIn 99
149 Amplified this voice.

Gregg.Hutchings1

Gregg Hutchings, London, United Kingdom

I give my voice because...

I want to see a annual stethoscope test introduced for all over 65s

This simple test can detect a heart murmur and potentially save lives - we need more tests taking place to enable early diagnosis to take place.

Voice Added: 17 Jan 2018


ShareShare on LinkedIn 84
149 Amplified this voice.

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John Genge, South West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 12 Jan 2018


ShareShare on LinkedIn 81
149 Amplified this voice.

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Greg Parker, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 15 Jan 2018


ShareShare on LinkedIn 92
149 Amplified this voice.

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Giorgia Howe, North West, United Kingdom

I give my voice because...

I want to see an annual stethoscope test introduced for all over 65s

Voice Added: 14 Jan 2018


ShareShare on LinkedIn 83
148 Amplified this voice.

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Siobhan Omahony, Outside UK

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 18 Jan 2018


ShareShare on LinkedIn 88
148 Amplified this voice.

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Anthony Easton , North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 17 Jan 2018


ShareShare on LinkedIn 86
148 Amplified this voice.

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Iain Bailey, Wales, United Kingdom

I give my voice because...

I want to see an annual stethoscope test introduced for all over 65s

Prevention is better than cure

Voice Added: 18 Jan 2018


ShareShare on LinkedIn 81
147 Amplified this voice.

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Andria Pugh, Outside UK

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 11 Jan 2018


ShareShare on LinkedIn 55
146 Amplified this voice.

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Sarah Kelly, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 18 Jan 2018


ShareShare on LinkedIn 50
145 Amplified this voice.

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Ben Hyman, Outside UK

I give my voice because...

I want to see increased awareness of heart valve disease

I had robotic Mitral Valve repair at Mayo Clinic, Rochester MN on 3/15/17

Voice Added: 11 Jan 2018


ShareShare on LinkedIn 54
140 Amplified this voice.

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Sandra Rickard, South West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

my father is being considered for a t.a.v.i. In the near future.

Voice Added: 11 Jan 2018


ShareShare on LinkedIn 58
139 Amplified this voice.

jondownes

Jonathan Downes, North West, United Kingdom

I give my voice because...

I think there needs to be improved guidelines for treatment of heart valve disease

I love it

Voice Added: 13 Jan 2018


ShareShare on LinkedIn 86
135 Amplified this voice.

jondownes

Jonathan Downes, North West, United Kingdom

I give my voice because...

I think there needs to be improved guidelines for treatment of heart valve disease

I am happy to help support this!

Voice Added: 14 Jan 2018


ShareShare on LinkedIn 94
135 Amplified this voice.

Jonathan.Downes

Jonathan Downes, North West, United Kingdom

I give my voice because...

I think there needs to be improved guidelines for treatment of heart valve disease

I want GPs to have improved access to echocardiography, I want GPs to have improved access to echocardiography, I want GPs to have improved access to echocardiography! I want GPs to have improved access to echocardiography


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Voice Added: 18 Jan 2018


ShareShare on LinkedIn 94
135 Amplified this voice.

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Jonathan Downes, West Midlands, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 17 Jan 2018


ShareShare on LinkedIn 87
135 Amplified this voice.

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Laura McKinlay, London, United Kingdom

I give my voice because...

I want to see an annual stethoscope test introduced for all over 65s

A simple stethoscope check can detect the first indication of a problem with the heart valves.

Voice Added: 15 Jan 2018


ShareShare on LinkedIn 84
134 Amplified this voice.

Default Avatar

Jonathan Downes, West Midlands, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

I love this idea

Voice Added: 18 Jan 2018


ShareShare on LinkedIn 87
127 Amplified this voice.

Jonathan.Downes

Jonathan Downes, North West, United Kingdom

I give my voice because...

I want to see an annual stethoscope test introduced for all over 65s

This is great

Voice Added: 18 Jan 2018


ShareShare on LinkedIn 83
126 Amplified this voice.

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Kirsty Bolter, South East, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

I used to be the structural heart disease clinical nurse specialist at St Thomas' Hospital. I now work in surrey as a heart failure clinical nurse specialist. Managing patients high symptom burden when I am not able to offer them definitive treatment options like minimally invasive surgery as I used to is challenging.


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Voice Added: 18 Jan 2018


ShareShare on LinkedIn 54
126 Amplified this voice.

Guy.Maddox

Guy Maddox, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

In my mid-30's I visited my GP following some dizzy spells. Fortunately for me he picked up on my heart murmur through a stethoscope check which led on to a cardiology appointment and several years later, an aortic valve replacement. On numerous occasions I have been told by doctors and nurses that I had been very lucky that my GP had made the association between my dizziness and a heart problem and had correctly detected a murmur.


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Voice Added: 17 Jan 2018


ShareShare on LinkedIn 71
123 Amplified this voice.

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Cheryl Usher, South West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 18 Jan 2018


ShareShare on LinkedIn 72
120 Amplified this voice.

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Barbara Loman, South East, United Kingdom

I give my voice because...

I think there needs to be improved guidelines for treatment of heart valve disease

Voice Added: 16 Jan 2018


ShareShare on LinkedIn 51
119 Amplified this voice.

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Charly Leahy, London, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 12 Jan 2018


ShareShare on LinkedIn 72
118 Amplified this voice.

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Helen Booth, South East, United Kingdom

I give my voice because...

The variations in treatment across UK, and comparison to the rest of Europe, are not acceptable.

I had a bio heart valve replacement by minimum invasion in 2012 and I am told this valve is now narrowing faster than expected and I would like to know more about why this is and whether the TAVI would be the as safe full open heart surgery.


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Voice Added: 17 Jan 2018


ShareShare on LinkedIn 72
115 Amplified this voice.

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Nerissa Santimano, London, United Kingdom

I give my voice because...

The variations in treatment across UK, and comparison to the rest of Europe, are not acceptable.

Post Procedural management and long-term care of patients with Heart Valve Disease needs to improve with consistency across the UK. More specifically, the quality of care patients receive in other areas of their lives that may not directly be related to their HV disease but might be impacted or influenced by it. Knowledge and awareness of professionals in a wide variety of care settings need to improve to cater to individuals who might have cardiac conditions such as HV disease. For example prescribing drugs in primary care or A&E that are contraindicated for the patients condition.


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Voice Added: 18 Jan 2018


ShareShare on LinkedIn 70
115 Amplified this voice.

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Lynn Rowlands Connolly , East Midlands, United Kingdom

I give my voice because...

I think there needs to be improved guidelines for treatment of heart valve disease

I'm awaiting aortic valve replacement (possibly mitral too) having originally sustained valve damage as a result of a prescription drug I took for restless leg syndrome around 10/12 years ago

Voice Added: 12 Jan 2018


ShareShare on LinkedIn 70
113 Amplified this voice.

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Lynn Butterworth, Wales, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 14 Jan 2018


ShareShare on LinkedIn 49
113 Amplified this voice.

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Catherine Bessant, East of England, United Kingdom

I give my voice because...

I want GPs to have improved access to echocardiography

I am currently awaiting surgery for aortic valve and root replacement . The tests have taken a long time ....

Voice Added: 18 Jan 2018


ShareShare on LinkedIn 62
107 Amplified this voice.

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Sue Boxall, South East, United Kingdom

I give my voice because...

I think there needs to be improved guidelines for treatment of heart valve disease

Voice Added: 16 Jan 2018


ShareShare on LinkedIn 70
106 Amplified this voice.

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Lee Boxall, South East, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 16 Jan 2018


ShareShare on LinkedIn 69
99 Amplified this voice.

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Julie Toogood, South West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 11 Jan 2018


ShareShare on LinkedIn 37
99 Amplified this voice.



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