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Amplify our Voices!

Amplify Our Voices!

Help us change the conversation about heart valve disease.

Give your voice to our campaign. We are not asking for financial donations, or even active time commitment, simply support.


Take a look at other people's voices and get sharing, tweeting and speading the word!

It's more important than ever that our voices are heard. The more we listen, the more lives we save!

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Trending Voices...

 
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Amanda Bott, London, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

If more people received an annual stethoscope check, I believe the number of people requiring emergency valve surgery would reduce. I also believe that if we pick up the disease earlier we can manage their treatment pathway more effectively and surgery can be planned at the optimum time for them.


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Voice Added: 15 Feb 2019


ShareShare on LinkedIn 414
733 Amplified this voice.

David.Gower

David Gower, South East, United Kingdom

I give my voice because...

I want to see an annual stethoscope test introduced for all over 65s

As a former professional sportsman, I know that the regular check ups are important to help us have an active life. Hearing that a simple, stethoscope test can pick up early signs of heart valve disease, I really want to see more people getting this as a standard.


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Voice Added: 16 Feb 2019


ShareShare on LinkedIn 443
664 Amplified this voice.

Gregg.Hutchings

Gregg Hutchings, London, United Kingdom

I give my voice because...

I think there needs to be improved guidelines for treatment of heart valve disease

The variations in treatment of heart valve disease aren't acceptable. We need to do something about it!

Voice Added: 15 Feb 2019


ShareShare on LinkedIn 397
656 Amplified this voice.

David.Lloyd

David Lloyd, North West, United Kingdom

I give my voice because...

I want to see an annual stethoscope test introduced for all over 65s

As a former professional sportsman, I know that the regular check ups are important to help us have an active life. Hearing that a simple, stethoscope test can pick up early signs of heart valve disease, I really want to see more people getting this as a standard.


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Voice Added: 16 Feb 2019


ShareShare on LinkedIn 414
607 Amplified this voice.

Keith.Jackson

Keith Jackson, West Midlands, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Through my work at the British Cardiac Patients Association and as Trustee at Heart Valve Voice, I know the importance of early detection of heart valve disease. Helping people to become more aware of symptoms and encouraging them to ask questions will assist in getting their treatment started early and to avoid crisis.


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Voice Added: 15 Feb 2019


ShareShare on LinkedIn 368
573 Amplified this voice.

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Michael George, South West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 15 Feb 2019


ShareShare on LinkedIn 234
396 Amplified this voice.

Mike.Smith

Mike Smith, North West, United Kingdom

I give my voice because...

I want GPs to have improved access to echocardiography

I want to help

Voice Added: 14 Feb 2019


ShareShare on LinkedIn 209
395 Amplified this voice.

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Lee-Ann Cameron, London, United Kingdom

I give my voice because...

I want to see an annual stethoscope test introduced for all over 65s

Voice Added: 16 Feb 2019


ShareShare on LinkedIn 213
380 Amplified this voice.

Wil.Woan

Wil Woan, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Let's raise awareness together!

Voice Added: 11 Feb 2019


ShareShare on LinkedIn 229
373 Amplified this voice.

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Linda Wood, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 16 Feb 2019


ShareShare on LinkedIn 193
359 Amplified this voice.

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Roger Hutchings, North West, United Kingdom

I give my voice because...

I want GPs to have improved access to echocardiography

As heart valve disease is a hidden killer far more needs to be done in terms of preventive monitoring as opposed to too late treatment

Voice Added: 15 Feb 2019


ShareShare on LinkedIn 185
352 Amplified this voice.

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Holly Dutton, North West, United Kingdom

I give my voice because...

I want to see an annual stethoscope test introduced for all over 65s

Voice Added: 15 Feb 2019


ShareShare on LinkedIn 177
352 Amplified this voice.

admin

Frank Health, North West, United Kingdom

I give my voice because...

That the variations in treatment across UK and compared to rest of Europe are not acceptable

More people need to know about this.

Voice Added: 15 Feb 2019


ShareShare on LinkedIn 248
349 Amplified this voice.

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David Sissons, London, United Kingdom

I give my voice because...

I want to see an annual stethoscope test introduced for all over 65s

Voice Added: 16 Feb 2019


ShareShare on LinkedIn 191
345 Amplified this voice.

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Iain Bailey, Wales, United Kingdom

I give my voice because...

I want to see an annual stethoscope test introduced for all over 65s

Prevention is better than cure

Voice Added: 16 Feb 2019


ShareShare on LinkedIn 195
338 Amplified this voice.

Christina.Bannister

Christina Bannister, South East, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

I am the Nursing & Allied Health Professional Representative for the Society for Cardiothoracic Surgery in Great Britain and Ireland

Voice Added: 16 Feb 2019


ShareShare on LinkedIn 197
338 Amplified this voice.

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Ben Hyman, Outside UK

I give my voice because...

I want to see increased awareness of heart valve disease

I had robotic Mitral Valve repair at Mayo Clinic, Rochester MN on 3/15/17

Voice Added: 15 Feb 2019


ShareShare on LinkedIn 160
338 Amplified this voice.

Pat.Khan

Pat Khan, North West, United Kingdom

I give my voice because...

I want GPs to have improved access to echocardiography

As a patient who has received treatment, I know how important my surgery was to improving my life. My GP picked up the murmur and was able to get my treatment pathway started. I want to make sure that all GPs have access to adequate levels of echo to assist the detection of the heart valve disease.


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Voice Added: 14 Feb 2019


ShareShare on LinkedIn 200
335 Amplified this voice.

Kris.Kendal

Kris Kendal, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 16 Feb 2019


ShareShare on LinkedIn 207
335 Amplified this voice.

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Jason Burgess, North West, United Kingdom

I give my voice because...

The variations in treatment across UK, and comparison to the rest of Europe, are not acceptable.

We need to do something to help get this cause the attention it deserves.

Voice Added: 16 Feb 2019


ShareShare on LinkedIn 195
333 Amplified this voice.

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Rueben Cumberbatch, London, United Kingdom

I give my voice because...

I think there needs to be improved guidelines for treatment of heart valve disease

Voice Added: 14 Feb 2019


ShareShare on LinkedIn 179
327 Amplified this voice.

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Giorgia Howe, North West, United Kingdom

I give my voice because...

I want to see an annual stethoscope test introduced for all over 65s

Voice Added: 16 Feb 2019


ShareShare on LinkedIn 178
323 Amplified this voice.

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Juliet Leighton-Jones, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 14 Feb 2019


ShareShare on LinkedIn 204
323 Amplified this voice.

Mike.Higginbottom

Mike Higginbottom, Yorkshire and North-East, United Kingdom

I give my voice because...

The variations in treatment across UK and compared to rest of Europe are not acceptable.

The variations in treatment across UK and compared to rest of Europe are not acceptable.

Voice Added: 16 Feb 2019


ShareShare on LinkedIn 201
322 Amplified this voice.

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Sarah Gilford, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 16 Feb 2019


ShareShare on LinkedIn 197
320 Amplified this voice.

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Jan Darby , East of England, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Having a mechanical mitral valve since 2008, I think supporting others going through the same operation is helpful

Voice Added: 16 Feb 2019


ShareShare on LinkedIn 181
320 Amplified this voice.

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Glenis Wood, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

A quick and simple test can save lives.

Voice Added: 16 Feb 2019


ShareShare on LinkedIn 220
318 Amplified this voice.

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Ivor Kirkwood, London, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 15 Feb 2019


ShareShare on LinkedIn 186
316 Amplified this voice.

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Janette Woan, North West, United Kingdom

I give my voice because...

I want to see an annual stethoscope test introduced for all over 65s

Voice Added: 14 Feb 2019


ShareShare on LinkedIn 191
315 Amplified this voice.

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Gary Monaghan, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 15 Feb 2019


ShareShare on LinkedIn 170
315 Amplified this voice.

Stephanie.Bunten

Stephanie Bunten, London, United Kingdom

I give my voice because...

I think there needs to be improved guidelines for treatment of heart valve disease

So easy to detect with a stethoscope check - let's raise awareness for this very common, but treatable disease

Voice Added: 16 Feb 2019


ShareShare on LinkedIn 201
314 Amplified this voice.

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John Genge, South West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 15 Feb 2019


ShareShare on LinkedIn 192
314 Amplified this voice.

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Rory McKean, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 16 Feb 2019


ShareShare on LinkedIn 210
314 Amplified this voice.

Gregg.Hutchings1

Gregg Hutchings, London, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 15 Feb 2019


ShareShare on LinkedIn 200
313 Amplified this voice.

Chris.Young

Chris Young, London, United Kingdom

I give my voice because...

I want to see an annual stethoscope test introduced for all over 65s

If more people received an annual stethoscope tests, I believe the number of emergency and crisis treatments which I perform would drop. Also I believe that if we pick up the disease earlier we can manage the treatment pathway more effectively.


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Voice Added: 15 Feb 2019


ShareShare on LinkedIn 200
313 Amplified this voice.

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Lynzi Birch , West Midlands, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 13 Feb 2019


ShareShare on LinkedIn 186
311 Amplified this voice.

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Anthony Easton , North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 13 Feb 2019


ShareShare on LinkedIn 173
311 Amplified this voice.

jondownes

Jonathan Downes, North West, United Kingdom

I give my voice because...

I think there needs to be improved guidelines for treatment of heart valve disease

I love it

Voice Added: 11 Feb 2019


ShareShare on LinkedIn 192
309 Amplified this voice.

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David Wood, North West, United Kingdom

I give my voice because...

I want GPs to have improved access to echocardiography

Voice Added: 15 Feb 2019


ShareShare on LinkedIn 185
309 Amplified this voice.

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Greg Parker, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 15 Feb 2019


ShareShare on LinkedIn 207
309 Amplified this voice.

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Sally Woan, North West, United Kingdom

I give my voice because...

I want GPs to have improved access to echocardiography

Voice Added: 14 Feb 2019


ShareShare on LinkedIn 175
309 Amplified this voice.

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Nicola Lilley, London, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 14 Feb 2019


ShareShare on LinkedIn 184
307 Amplified this voice.

wil.woan1

Wil Woan, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 16 Feb 2019


ShareShare on LinkedIn 204
306 Amplified this voice.

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Kathleen Rogers, Wales, United Kingdom

I give my voice because...

I want to see an annual stethoscope test introduced for all over 65s

One heart look after it

Voice Added: 14 Feb 2019


ShareShare on LinkedIn 189
306 Amplified this voice.

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Elissa Headford, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 15 Feb 2019


ShareShare on LinkedIn 200
304 Amplified this voice.

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Clive Betteridge, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 15 Feb 2019


ShareShare on LinkedIn 188
303 Amplified this voice.

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Andria Pugh, Outside UK

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 13 Feb 2019


ShareShare on LinkedIn 164
302 Amplified this voice.

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Martin Kelly, Outside UK

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 15 Feb 2019


ShareShare on LinkedIn 187
300 Amplified this voice.

admin

Frank Health, North West, United Kingdom

I give my voice because...

I want GPs to have improved access to echocardiography

This could save many lives!

Voice Added: 15 Feb 2019


ShareShare on LinkedIn 198
299 Amplified this voice.

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Laura McKinlay, London, United Kingdom

I give my voice because...

I want to see an annual stethoscope test introduced for all over 65s

A simple stethoscope check can detect the first indication of a problem with the heart valves.

Voice Added: 14 Feb 2019


ShareShare on LinkedIn 181
299 Amplified this voice.

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Jim Gray, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 12 Feb 2019


ShareShare on LinkedIn 192
299 Amplified this voice.

Jonathan.Downes

Jonathan Downes, North West, United Kingdom

I give my voice because...

I want to see an annual stethoscope test introduced for all over 65s

This is great

Voice Added: 15 Feb 2019


ShareShare on LinkedIn 174
297 Amplified this voice.

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Barry Matthews, North West, United Kingdom

I give my voice because...

I want to see an annual stethoscope test introduced for all over 65s

More people need to tested at

Voice Added: 14 Feb 2019


ShareShare on LinkedIn 213
297 Amplified this voice.

Gregg.Hutchings1

Gregg Hutchings, London, United Kingdom

I give my voice because...

I want to see a annual stethoscope test introduced for all over 65s

This simple test can detect a heart murmur and potentially save lives - we need more tests taking place to enable early diagnosis to take place.

Voice Added: 15 Feb 2019


ShareShare on LinkedIn 213
296 Amplified this voice.

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Siobhan Omahony, Outside UK

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 16 Feb 2019


ShareShare on LinkedIn 200
296 Amplified this voice.

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Jonathan Downes, West Midlands, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

I love this idea

Voice Added: 14 Feb 2019


ShareShare on LinkedIn 185
295 Amplified this voice.

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Frank Smith, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 15 Feb 2019


ShareShare on LinkedIn 181
293 Amplified this voice.

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Sandra Rickard, South West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

my father is being considered for a t.a.v.i. In the near future.

Voice Added: 16 Feb 2019


ShareShare on LinkedIn 157
290 Amplified this voice.

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Sarah Kelly, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 16 Feb 2019


ShareShare on LinkedIn 178
286 Amplified this voice.

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Jonathan Downes, West Midlands, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 14 Feb 2019


ShareShare on LinkedIn 196
285 Amplified this voice.

jondownes

Jonathan Downes, North West, United Kingdom

I give my voice because...

I think there needs to be improved guidelines for treatment of heart valve disease

I am happy to help support this!

Voice Added: 16 Feb 2019


ShareShare on LinkedIn 195
284 Amplified this voice.

Jonathan.Downes

Jonathan Downes, North West, United Kingdom

I give my voice because...

I think there needs to be improved guidelines for treatment of heart valve disease

I want GPs to have improved access to echocardiography, I want GPs to have improved access to echocardiography, I want GPs to have improved access to echocardiography! I want GPs to have improved access to echocardiography


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Voice Added: 16 Feb 2019


ShareShare on LinkedIn 203
284 Amplified this voice.

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Lynn Rowlands Connolly , East Midlands, United Kingdom

I give my voice because...

I think there needs to be improved guidelines for treatment of heart valve disease

I'm awaiting aortic valve replacement (possibly mitral too) having originally sustained valve damage as a result of a prescription drug I took for restless leg syndrome around 10/12 years ago

Voice Added: 15 Feb 2019


ShareShare on LinkedIn 181
284 Amplified this voice.

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Cheryl Usher, South West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 13 Feb 2019


ShareShare on LinkedIn 178
282 Amplified this voice.

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Barbara Loman, South East, United Kingdom

I give my voice because...

I think there needs to be improved guidelines for treatment of heart valve disease

Voice Added: 16 Feb 2019


ShareShare on LinkedIn 187
280 Amplified this voice.

Guy.Maddox

Guy Maddox, North West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

In my mid-30's I visited my GP following some dizzy spells. Fortunately for me he picked up on my heart murmur through a stethoscope check which led on to a cardiology appointment and several years later, an aortic valve replacement. On numerous occasions I have been told by doctors and nurses that I had been very lucky that my GP had made the association between my dizziness and a heart problem and had correctly detected a murmur.


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Voice Added: 12 Feb 2019


ShareShare on LinkedIn 167
278 Amplified this voice.

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Lee Boxall, South East, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 15 Feb 2019


ShareShare on LinkedIn 194
278 Amplified this voice.

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Kirsty Bolter, South East, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

I used to be the structural heart disease clinical nurse specialist at St Thomas' Hospital. I now work in surrey as a heart failure clinical nurse specialist. Managing patients high symptom burden when I am not able to offer them definitive treatment options like minimally invasive surgery as I used to is challenging.


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Voice Added: 16 Feb 2019


ShareShare on LinkedIn 202
277 Amplified this voice.

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Charly Leahy, London, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 16 Feb 2019


ShareShare on LinkedIn 178
265 Amplified this voice.

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Lynn Butterworth, Wales, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 16 Feb 2019


ShareShare on LinkedIn 164
265 Amplified this voice.

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Sue Boxall, South East, United Kingdom

I give my voice because...

I think there needs to be improved guidelines for treatment of heart valve disease

Voice Added: 16 Feb 2019


ShareShare on LinkedIn 173
263 Amplified this voice.

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Helen Booth, South East, United Kingdom

I give my voice because...

The variations in treatment across UK, and comparison to the rest of Europe, are not acceptable.

I had a bio heart valve replacement by minimum invasion in 2012 and I am told this valve is now narrowing faster than expected and I would like to know more about why this is and whether the TAVI would be the as safe full open heart surgery.


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Voice Added: 16 Feb 2019


ShareShare on LinkedIn 172
262 Amplified this voice.

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Nerissa Santimano, London, United Kingdom

I give my voice because...

The variations in treatment across UK, and comparison to the rest of Europe, are not acceptable.

Post Procedural management and long-term care of patients with Heart Valve Disease needs to improve with consistency across the UK. More specifically, the quality of care patients receive in other areas of their lives that may not directly be related to their HV disease but might be impacted or influenced by it. Knowledge and awareness of professionals in a wide variety of care settings need to improve to cater to individuals who might have cardiac conditions such as HV disease. For example prescribing drugs in primary care or A&E that are contraindicated for the patients condition.


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Voice Added: 13 Feb 2019


ShareShare on LinkedIn 193
254 Amplified this voice.

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Julie Toogood, South West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 15 Feb 2019


ShareShare on LinkedIn 145
250 Amplified this voice.

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Catherine Bessant, East of England, United Kingdom

I give my voice because...

I want GPs to have improved access to echocardiography

I am currently awaiting surgery for aortic valve and root replacement . The tests have taken a long time ....

Voice Added: 15 Feb 2019


ShareShare on LinkedIn 176
247 Amplified this voice.

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Julie Mackinder, East Midlands, United Kingdom

I give my voice because...

I want to see an annual stethoscope test introduced for all over 65s

My mother had an undiagnosed damaged heart valve which led to replacement, 8cm aortic aneurism, pacemaker, stroke and dementia. A terrible waste of life and expense for the NHS.

Voice Added: 16 Feb 2019


ShareShare on LinkedIn 160
244 Amplified this voice.

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John Unthank, Yorkshire and North-East, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 16 Feb 2019


ShareShare on LinkedIn 126
238 Amplified this voice.

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Philip Nuckley, South East, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

In 1980 a Registrar, in his last shift before moving hospitals, heard a previously unidentified heart murmur in my pre-op check for a minor nose operation. Six years later I had an aortic valve and aortic root graft operation to correct a dangerous aortic aneurysm. The animal tissue valve lasted 22 years before one leaflet failed and the valve was replaced by a bovine pericardium valve in 2009. In 2016 I contracted a bacterial infection during dental treatment (despite having a course of antibiotics), which took 5 months to identify. By this time I was very very very ill - acute endocarditis - and an aortic homo-graft and lengthy course of aggressive antibiotics followed. I am still recovering 8 months after the homo-graft operation


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Voice Added: 14 Feb 2019


ShareShare on LinkedIn 128
218 Amplified this voice.

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John Unthank, Yorkshire and North-East, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 15 Feb 2019


ShareShare on LinkedIn 135
192 Amplified this voice.

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Kerry Pena, Yorkshire and North-East, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

I have seen patients’ lives transformed from having been diagnosed with heart valve disease to having had a successful valve procedure and how it made a great impact in their lives and their family’s.


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Voice Added: 13 Feb 2019


ShareShare on LinkedIn 110
156 Amplified this voice.

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Terri Richmond, West Midlands, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Staying positive and active

Voice Added: 15 Feb 2019


ShareShare on LinkedIn 78
142 Amplified this voice.

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Valerie Thomas, South West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 15 Feb 2019


ShareShare on LinkedIn 88
123 Amplified this voice.

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Thelma Pointer, East of England, United Kingdom

I give my voice because...

The variations in treatment across UK, and comparison to the rest of Europe, are not acceptable.

Keeping patients active will save on nhs resources later on.

Voice Added: 14 Feb 2019


ShareShare on LinkedIn 70
108 Amplified this voice.

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Norm Linsky, Outside UK

I give my voice because...

I want to see increased awareness of heart valve disease

Hi ! I'm the executive director of The Mended Hearts, Inc., the U.S.-based support organization for persons coping with heart disease. www.mendedhearts.org Thank you for all you do ! Please let me know if we can be of any help to you.


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Voice Added: 13 Feb 2019


ShareShare on LinkedIn 77
104 Amplified this voice.

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Susan Strong, Outside UK

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 15 Feb 2019


ShareShare on LinkedIn 76
91 Amplified this voice.

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Louise Hatt, South East, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

I

Voice Added: 16 Feb 2019


ShareShare on LinkedIn 74
89 Amplified this voice.

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Kevin Malone , Outside UK

I give my voice because...

I want to see an annual stethoscope test introduced for all over 65s

A public awareness campaign is needed to highlight symptoms of heart valve disease which may be detected and treated earlier....

Voice Added: 14 Feb 2019


ShareShare on LinkedIn 47
89 Amplified this voice.

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Toni Hitchings, East of England, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

I was born with an Aortic Regurgitation. My heart failed during pregnancy in 2011, and in 2012 I had OHS to replace my Aortic Valve. I now have a mechanical heart valve.

Voice Added: 15 Feb 2019


ShareShare on LinkedIn 44
88 Amplified this voice.

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Laurence Smith, Scotland, United Kingdom

I give my voice because...

I want GPs to have improved access to echocardiography

I am 39, played sport and had a very active life with my career. I never had a echo and dread to think what would have happened had I not gone private and had a good consultant and surgeon. I want to talk to other people to see how active I can be again? How long before I am back to some normality? And try and make sure gps are aware and get echocardiogram done.


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Voice Added: 14 Feb 2019


ShareShare on LinkedIn 69
86 Amplified this voice.

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Steven Kimber, Yorkshire and North-East, United Kingdom

I give my voice because...

Mitral Valve Repair & Aortic Valve Replacement

Voice Added: 11 Feb 2019


ShareShare on LinkedIn 60
83 Amplified this voice.

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Michael Doughty, South West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 15 Feb 2019


ShareShare on LinkedIn 47
76 Amplified this voice.

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Elouise Foster, Yorkshire and North-East, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 13 Feb 2019


ShareShare on LinkedIn 65
70 Amplified this voice.

Tom.Smith

Tom Smith, London, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 16 Feb 2019


ShareShare on LinkedIn 48
69 Amplified this voice.

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Alison Banayoti, South East, United Kingdom

I give my voice because...

I want to see an annual stethoscope test introduced for all over 65s

Voice Added: 13 Feb 2019


ShareShare on LinkedIn 45
65 Amplified this voice.

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Pamela Fellows, Yorkshire and North-East, United Kingdom

I give my voice because...

I want GPs to have improved access to echocardiography

I started having problems with dizziness and breathlessness in early April. Went to my GP who referred me for an Echocardiogram. Didn't hear anything so rang my GP on May 4th got a cancellation for 11.30 that day. Went to Halifax but they did an ECG and said I would get referred for an Echocardiogram. Had an appointment for 15th June with Cardiologist, cancelled, appointment 13th July cancelled. Finally saw him 18th July, went for Angiogram 17th August. I have a narrowed heart valve and a narrowed artery. being referred to Leeds General I will have to see their Specialist before I go on the waiting list. I am 70 years old and my husband is 75 and has Cognitive Impairment. Terrified at the thought of the operation.


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Voice Added: 13 Feb 2019


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64 Amplified this voice.

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Peter Every, Yorkshire and North-East, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

I was diagnosed with a heart murmur 4 years ago and my care and advice has ranged from poor to fantastic and it isn’t until you increase your own knowledge and awareness you understand how things can go wrong . In October 2017 my annual assessments were cancelled and put to 3 yearly reviews , I’ve found out since the doctor I saw for the annual assessment was a locum who had reviewed my echocardiogram and decided my stenosis was in his opinion “Mild” even 4 years ago it was moderate to severe so I questioned his decision with my GP and eventually got to see the new head of cardiology at Rotherham Hospital who had arrived at my hospital in 2018 and I he told me I was born with a Bicupsid Valve which came as a shock as previous consultants had never mentioned it or explained properly what a heart murmur was. He arranged for loads of tests to be done And told me my stenosis was now severe and I would require an operation in the next few months. I did a lot of reasearch and asked to be referred to Mr Chris Young at St Thomas Hospital in London. Mr Young and his team , especially Amanda Bott have been fantastic and I go into hospital on Monday 3rd September 2018 to have my AVR done which is scheduled in for Wednesday 5th September so as you can see the range of care and treatment varies massively and I have experienced both sides of the equation


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Voice Added: 13 Feb 2019


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Trudie Dawson, South East, United Kingdom

I give my voice because...

The variations in treatment across UK, and comparison to the rest of Europe, are not acceptable.

My cardiologist believes multible heart valve reflux and depletion of the aortic root would not cause tiredness or brethlessness..

Voice Added: 16 Feb 2019


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David Gale, East Midlands, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

I was diagnosed with Aortic Stenosis about 2 years ago. My GP was not picking up on the symptoms. I am now being monitored for valve deterioration and possible future surgery.

Voice Added: 16 Feb 2019


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Andy Morrison, Scotland, United Kingdom

I give my voice because...

The variations in treatment across UK, and comparison to the rest of Europe, are not acceptable.

Thanks to the NHS and specifically The Golden Jubilee in Clydebank I am still alive and kicking!!

Voice Added: 14 Feb 2019


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Janette Rose, London, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

22nd International Conference on New Horizons in Cardiology & Cardiologists Education. March 07-08, 2019 Berlin, Germany Theme: Experts Insights into Discovery of Millennium Routes of Cardiology On behalf of the organizing committee, we invite you to join us for an exciting and stimulating meeting! The principal objective of this conference is to provide an international forum for cutting edge research in Heart Diseases, Cardiology and Cardiologists Education Cardiology Insights 2019 is a global platform to discuss and learn about Heart Associated Diseases and their Treatment Janette Rose | Program Director Cardiology Insights 2019 Website : https://cardiologyinsights.euroscicon.com


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Voice Added: 14 Feb 2019


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Richard Goodwin, North West, United Kingdom

I give my voice because...

I want GPs to have improved access to echocardiography

Increase Public and GP and Primary Health Care staff awareness that breathlessness - particularly on excercise - is not necessarily unfitness or respiratory in origin. Basic stethoscope check for heart sounds in all breathless patients and when annual BP checked requires a minimum of training. ( Make this mandatory over 60) Improved and even GP access to Echo ( can be auditted to pick up under or over referral) Improved access to valve surgery evenly spread across UK. Valve surgery - especially if other procedures required - is not without risk even in the best providers however it can both be lifesaving and give enormous boost to quality of life and reduction in other hospital costs.


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Voice Added: 16 Feb 2019


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Ralph Elliott, Outside UK

I give my voice because...

I want to see increased awareness of heart valve disease

I had A TAVR placed June 12,2018 Doing great

Voice Added: 14 Feb 2019


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Amanda Hutchison, Scotland, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

I am going for avr tomorrow

Voice Added: 15 Feb 2019


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John Mitchell, East of England, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 14 Feb 2019


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15 Amplified this voice.

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Amanda Hutchison, Scotland, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

At the beginning of 2018 I found out I had aortic regurgitation after going to doctor with dizzy turns. I had my aortic valve repaired on the 15th of November

Voice Added: 11 Feb 2019


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Ernest Caddy, South West, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 16 Feb 2019


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9 Amplified this voice.

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Lorna Gillon, Scotland, United Kingdom

I give my voice because...

I want to see increased awareness of heart valve disease

Voice Added: 16 Feb 2019


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Kirsty Wilson , Scotland, United Kingdom

I give my voice because...

The variations in treatment across UK, and comparison to the rest of Europe, are not acceptable.

Voice Added: 16 Feb 2019


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