Heart Valve Voice News
16 February 2024
In a landmark moment for the heart valve disease community, Heart Valve Voice proudly announces the election of its new Chairman of the Board of Trustees, Phill Read. With an unmatched determination to support patients, and a profound understanding of the challenges faced by patients, Phill marks a significant milestone as the first patient to lead the charity’s Board.
12 April 2024
As we mark 25 years of the National Institute for Health and Care Excellence (NICE), I wanted to take a moment to reflect on the impact of its Guideline for ‘Heart valve disease presenting in adults: investigation and management’ published in 2021.
29 February 2024
In a testament to her determination, Marina McGrath, a passionate advocate for Heart Valve Voice, marked the end of her remarkable fundraising walk today, leaving a trail of inspiration in her wake. The conclusion of Marina's journey not only marks her personal triumph but is also a symbol of the power of positive ageing and life after heart valve disease treatment.
18 January 2024
This year, Heart Valve Voice advocate Marina McGrath has decided to take on a marathon of challenges to mark her 70th birthday and raise money for Heart Valve Voice. Every month until November, Marina will take on a different challenge to highlight the quality of life after heart valve disease treatment, starting with a 180-mile virtual walk from her home in Sale to the hospital in London where she was treated.
23 November 2023
This week at PCR London Valve, Heart Valve Voice held a Patient Engagement Session with our Patient Advocates to discuss Global Heart Hub's Shared Decision-Making Roadmap. The session looked a the roadmap from a UK perspective, and our advocates explained their experience of shared decision-making and looked at ways we can use the roadmap to improve patient experience in the UK.
11 September 2023
Today marks the start of International Heart Valve Disease Awareness Week. A week that aims to improve the global diagnosis, treatment, and management of heart valve disease. The week is celebrated by charities from across the globe, all to promote awareness of the disease, its symptoms and the importance of early detection and timely treatment.
04 September 2023
Earlier this year, Clinical Lead for Intervention at Liverpool Heart and Chest Hospital, Dr Clare Appleby, gave a presentation to leading figures in the heart valve disease world about gender inequalities in heart valve disease treatment. Here, Dr Appleby discusses that presentation and looks at how to address inequalities in heart valve disease care.