21 August 2020
In December 2018, 33 year old Support Worker at Autism Together, Jeanine Jones was celebrating the birth of her first daughter, Phoebe. Flash forward four months and she was being raced across Liverpool to Liverpool Heart and Chest Hospital with her heart, lungs, liver, kidneys and brain starting to fail. There, she received her life saving double valve replacement.
22 June 2022
According to new research, urgent action is needed to clear the backlog of people requiring treatment for aortic stenosis or risk unnecessary loss of life.
10 June 2022
Heart Valve Voice is delighted to announce that we have become a member of the World Heart Federation.
31 May 2022
We held the fifth stage of our Your Heart Matters tour last week. For this project, we have travelled across the United Kingdom promoting awareness of heart valve disease and offering stethoscope checks to those over the 50.
16 May 2022
Last week, Heart Valve Voice were in Belfast for the Society for Cardiothoracic Surgery (SCTS) Annual Meeting. We met with clinicians from across the UK, industry leaders and patients to listen, learn and share.
06 May 2022
At the beginning of 2021, Fireman, Joe Munro, had just set himself a challenge to run 5 kilometres every day. Then, after feeling unwell at work one day, his GP listened to his heart and heard a murmur. A subsequent echo found he had severe aortic stenosis, and required urgent intervention. Now, just a year later, he is back at work with his watch, fighting fires and saving lives.
22 April 2022
As a part of the SCTS Annual Meeting 2022, we will be holding a sponsored run, encouraging participants to run 5 km and help raise awareness of cardiovascular diseases.
14 April 2022
This year, to mark the 20th Anniversary of the first TAVI we will be sharing twenty TAVI stories - one for every year the procedure has been being performed. 85-year-old, Mary Kernick, was diagnosed with heart valve disease while having checks for suspected gall stones. After discussions with her clinician, they decided a TAVI was the best treatment option for her. This is her valve disease story.
13 April 2022
This year marks 20 years since the first clinical TAVI procedure was performed by Alain Cribbier, and to celebrate this historic milestone, Heart Valve Voice will be sharing 20 TAVI stories throughout the year, one for every year this pioneering procedure has been performed.
30 March 2022
Heart Valve Voice is delighted to launch our Health Unlocked Online Community. This online community is a space where patients can share their experiences, ask questions and find information and support to help them navigate their pathway.
25 March 2022
Heart Valve Voice is pleased to announce the launch of our 2022 Photography Competition, ‘Photos from the Heart.’ This competition is an opportunity for anyone affected by heart valve disease to share pictures of what heart valve disease treatment means to them, and help us raise awareness of this common, serious, but treatable condition.