Heart Valve Voice News

Across the country, COVID-19 infections continue to rise, and as the infection rates rise, so too do hospital admissions and, sadly, deaths. As we move forward in this second wave of COVID-19 response, we must learn from the first wave. For most people suffering from heart valve disease, the consequences of not being treated far outweigh the risk of contracting COVID-19 whilst in hospital. Therefore, the first lesson we should take from the first wave is to continue to treat heart valve disease patients in a timely and safe way. 

Yesterday, Scottish Parliament held a debate on an Early Day Motion brought forward by David Stewart MSP on Heart Valve Disease Awareness Week 2020.

Today marks the start of Heart Valve Disease Awareness Week 2020, a week where our partners on the Global Heart Hubs’ Valve Disease Patient Council come together to raise awareness of this common, serious, but treatable condition.

Birmingham MP, Steve McCabe was diagnosed with heart valve disease eight years ago. As with many heart valve disease patients he had not experienced any obvious symptoms.

In December 2018, 33 year old Support Worker at Autism Together, Jeanine Jones was celebrating the birth of her first daughter, Phoebe. Flash forward four months and she was being raced across Liverpool to Liverpool Heart and Chest Hospital with her heart, lungs, liver, kidneys and brain starting to fail. There, she received her life saving double valve replacement.

Today, Heart Valve Voice launch our Virtual Appointment Guide for valve disease patients. The guide was created in response to the reduction of in-person services due to COVID-19 and will help foster the same comfort and confidence patients feel when they meet their clinician.

Gary Russel is a 52-year-old Civil Servant from London. After being diagnosed with heart valve disease in his twenties at a medical to join the Police Force, his valve disease story went on for two decades before he was treated in 2013.

While the outbreak of COVID-19 has placed unprecedented pressure on the NHS, Public Health England's admissions data points towards a concerning trend of people avoiding hospitals out of fear of contracting COVID-19. While concerns around COVID-19 are understandable, by not receiving urgent treatments, patients may be putting their lives at risk.

83-year-old retired office worker, Jessie Moss, was treated for severe aortic stenosis at the very height of the COVID-19 outbreak. Thanks to Professor Newby and the team in Edinburgh, and with the help of minimally invasive treatment, Jessie was able to receive the treatment she urgently required, and can now focus on her recovery and getting back out on the bowls green. Here, is her story:

At the very height of the COVID-19 outbreak, retired postman and hospital worker, Lewis Benn, was awaiting treatment for severe aortic stenosis. Having been told he would have to wait till September, Lewis feared for his life, but thanks to the excellent work of Dr Dan Blackman and the team at Leeds General Infirmary, Lewis was admitted, treated and discharged over the course of just 3 days. Here, is his story.