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14 September 2020

Today marks the start of Heart Valve Disease Awareness Week 2020. Day 1 has seen the release of Global Heart Hub's European Heart Health Survey. While in the UK Heart Valve Voice and our patient advocates have taken to the TV and Radio to promote the signs and symptoms of heart valve disease - and encourage over 65s to ask their GP for a stethoscope check.

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08 September 2020

Next week is Heart Valve Disease Awareness Week, a week where patient organisations from around the world come together to raise awareness of the disease. This year, Awareness Week is focussed on #ListenToYourHeart, and we will be urging everyone to ask their doctor for a stethoscope check, the first step in diagnosing heart valve disease.

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12 August 2020

Last month I had a discussion with Professor Simon Ray about how COVID-19 had led to digital innovation in patient pathways. Part of that discussion was around the dramatic reduction of in-person appointments in favour of virtual appointments. We spoke about what best practice in this new style of appointment looks like, and the importance of recreating the comfort and confidence patients get in-person services in this new style of appointment.

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30 July 2020

Livvy Gosney is currently waiting for surgery for bicuspid valve disease. This is her story about life before treatment.

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15 July 2020

Last week I spoke with Professor Simon Ray, President of British Cardiovascular Society, about changes to appointments, clinics and MDT’s. In our discussion, we looked at how digital innovation has been used to limit in-person services in favour of virtual clinics. Now, the reasoning for this move may be COVID-19, but as we move forward, it is clear that these changes will remain. Patient experience must be at the centre of this new practice, and we recreate the same sense of comfort patients receive from meeting their clinical team in person.

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15 June 2020

Today marks the launch of The Global Heart Hub’s ‘Just Go’ campaign. Our international alliance of heart patient organisations, in collaboration with FH Europe, have launched a ‘patient to patient’ confidence-building campaign aimed at saving lives by encouraging those with symptoms of a heart attack, heart valve disease or stroke emergency to seek medical help. 

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03 June 2020

The first week of June is Volunteers' Week across the country, an annual celebration of the contribution millions of people make across the UK through volunteering. COVID-19 has stopped many of the activities we would usually do, so we're taking this opportunity to reflect on the contribution volunteers make at Heart Valve Voice and beyond.

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19 May 2020

In my last blog, I discussed the importance of capturing key learnings from Phase 1 of NHS England's COVID-19 response and looked at ways in which we could use these learnings to support us in delivering the NHS Long Term Plan.

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17 May 2020

Heart Valve Voice advocate, Ian, has challenged himself to cycle 25 miles every day for 25 days to raise awareness of heart valve disease. With 14 days of cycling in his legs, Ian gave us this update.

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