19 November 2019
Wow, Five years! To see a report which crystallises the hard work that has been put in over these past five years is heart-warming. Whilst the future of heart valve disease looks challenging, seeing how we turned the aims and aspirations from five years ago into real change provides hope.
05 October 2019
Day Two Part One After yesterday I’ve been thinking a lot about the role of patients voice in Heart Valve Voice and heart valve disease more broadly. I love my role as a patient advocate, I take it seriously and yet last night I had to pinch myself sat in the beautiful Portuguese evening as I thought you don’t often get the opportunity to give back and in such wonderful places!
04 October 2019
Day One- Morning The first part of my day at EACTs was spent discussing the advancements in Minimal Invasive Surgery (MIS). I managed to speak to Chris Young, Consultant Cardiothoracic Surgeon at St. Thomas' Hospital about innovative treatments and the advancement in MIS.
01 October 2019
Wil is writing a fortnightly blog and discussing a range of topics over the coming months. In this addition, he's talking about the role of Heart Valve Voice in the cardiovascular landscape, so much of the discussion is about awareness. For us, there are three important parts to this: education, reach and collaboration. .
19 September 2019
Thursday was a big day for both Heart Valve Voice and the Global Heart Hub as bot organisations delivered some exciting and impact projects. Heart Valve Voice released their publication of the Welsh State of the Nation Report and delivered a webinar to over 21,000 over 60s and Global Heart Hub welcomed Initiative Herzklappe to the Alliance.
18 September 2019
Mid way through Heart Valve Disease Awareness Week and neither our energy, nor our schedules, showed any sign of letting up.