05 October 2019
Day Two Part One After yesterday I’ve been thinking a lot about the role of patients voice in Heart Valve Voice and heart valve disease more broadly. I love my role as a patient advocate, I take it seriously and yet last night I had to pinch myself sat in the beautiful Portuguese evening as I thought you don’t often get the opportunity to give back and in such wonderful places!
04 October 2019
Day One- Afternoon Having spoken about all the advancements in treatment options I now wanted to know what barriers were stopping patients accessing these treatments.
04 October 2019
Day One- Morning The first part of my day at EACTs was spent discussing the advancements in Minimal Invasive Surgery (MIS). I managed to speak to Chris Young, Consultant Cardiothoracic Surgeon at St. Thomas' Hospital about innovative treatments and the advancement in MIS.
01 October 2019
Wil is writing a fortnightly blog and discussing a range of topics over the coming months. In this addition, he's talking about the role of Heart Valve Voice in the cardiovascular landscape, so much of the discussion is about awareness. For us, there are three important parts to this: education, reach and collaboration. .
19 September 2019
Thursday was a big day for both Heart Valve Voice and the Global Heart Hub as bot organisations delivered some exciting and impact projects. Heart Valve Voice released their publication of the Welsh State of the Nation Report and delivered a webinar to over 21,000 over 60s and Global Heart Hub welcomed Initiative Herzklappe to the Alliance.
18 September 2019
Mid way through Heart Valve Disease Awareness Week and neither our energy, nor our schedules, showed any sign of letting up.
17 September 2019
Yesterday was a great day for Heart Valve Voice and for the European Heart Valve Disease Awareness Week. After the success of Street Doctor in London and Edinburgh the team couldn’t wait to get going and we were in a new city and a new country. Our third in the last 24 hours!!
16 September 2019
Our CEO Wil Woan will be writing a daily blog for European Heart Valve Disease Awareness Week read the first here...
30 August 2019
On September the 22nd patients from across the UK will walk a mile to inspire others and demonstrate that you really do get your life back after treatment if it’s detected early. Brenda Walker is away in September so she decided to complete her walk a little earlier and here’s how she got on….
16 August 2019
Heart Valve Voice will be partnering with Lancashire Cricket Foundation to improve the diagnosis, treatment and management of heart valve disease by raising awareness of its severity and the need for timely detection at the forthcoming Ashes Test.