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24 June 2021

I decided to contact my MP after seeing Heart Valve Voice's #JustTreatUs campaign and thought it important to share my story and the stories of other valve disease patients. So that evening, I reached out to my local MP, Tim Loughton. I was really surprised to receive a reply in just a few hours, as I’m very aware of how busy MPs are. I was thrilled that he got back to me and wanted to help support the #JustTreatUs campaign.

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03 June 2021

The first week of June is Volunteers' Week across the country, an annual celebration of the contribution millions of people make across the UK through volunteering. The past 18 months have placed an extraordinary strain on the sector, but I have been overwhelmed to see how the country has come together to support charities that have struggled financially while the demand for their services has increased significantly.

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20 May 2021

The journey of our submission to NICE for the draft guidelines started in 2016 in the Churchill Rooms in Westminster. We were there to launch our Heart Healthy Future report. The then National Clinical Director for Heart Disease, Professor Huon Gray, attended the event. We had been lobbying for increased awareness of heart valve disease. That day, Professor Gray told me that he had instructed NICE to look at the guidelines for heart valve disease. For a charity that was only a couple of years old, it was an extraordinary moment and let off the starting pistol that led to the work we have done over the past four months. 

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13 May 2021

As part of Mental Health Awareness Week 2021, we invited Mindfulness teacher, Katie Sheen to write about her experiences of good mental health when undergoing treatment, and she how teaches Mindfulness now to support people going through challenging treatments.

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12 May 2021

To celebrate International Nurses Day 2021, we asked Structural Heart Specialist Nurse at James Cook Hospital, Gemma McCalmont, to write a blog about why she decided to become a nurse, how she became a specialist TAVI nurse, and what advice she would give to anyone thinking of becoming a nurse.

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11 March 2021

Last week I read with intrigue the Heart editorial about Professional Societies' role in developing guidelines and the importance of NICE being an independent, evidence-based organisation providing recommendations.

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08 March 2021

I started working at Heart Valve Voice fresh out of University and I began in an administrative role before very quickly started moving up to bigger responsibilities, and I am now a Head of Programmes and completing a level 4 apprenticeship in Project Management.

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16 February 2021

At the beginning of February, Heart Valve Voice launched our 100,000 Conversations campaign. We aim to start 100,000 conversations about the signs and symptoms of heart valve disease - and start a national conversation about this common, serious, but treatable condition.

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05 February 2021

Phill Read, 43, was diagnosed with moderate mitral valve disease in February 2020. A Partnerships Manager for an over 60s property specialist and an avid cyclist, Phill and his wife Sacha have researched different treatment options and discussed them with his clinician to ensure they make the right decision for themselves, their children Cameron, 22, Yasmin, 18, Sadie, 8, and, of course, the family dog, Harry.

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19 January 2021

The strain COVID-19 has placed on the NHS has been severe, and the news of the Hospitals struggling to cope with the pressures of COVID-19 will likely cause many people concern. However, it is vital that people know that the NHS is still here to help you despite these pressures. If you have a heart emergency and need medical attention, do not hesitate to respond - when your heart says so, just go.

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