Stories

Days before being admitted to St Thomas’s Hospital, London, Alison Banayoti was walking her dogs as she does everyday and thinking about her impending surgery. Fourteen years after being diagnosed with aortic and bicuspid heart valve disease, she was finally getting the treatment that she had been waiting to receive.

Sandra Holder’s job in retail meant she was on her feet for much of her day, so it wasn’t a surprise when she started to experience swollen ankles and feet. It wasn’t until she was diagnosed with severe aortic stenosis and was told that she was at high risk of heart failure within two years if she was not treated, that she realised it was something she should have paid more attention to. Sandra’s story serves as a warning for others of the importance of having your heart checked regularly.

P.J. (Patrick) Brien, didn’t think he had anything wrong with his heart, after all, he had no red flag symptoms like tiredness, dizziness or chest pains. However with a family history of heart problems and some breathlessness that he put down to the dusty conditions at work, P.J.’s wife suspected something was wrong. Her caution was warranted and most likely saved his life as it was later determined that his aortic valve would need replacing.

Bill Dean from Mold, North Wales, isn't your typical 77 year old. Bill spends most of his free time in the mountains of Snowdonia as a Mountain Rescue Volunteer, a job he’s been proud to do for the past 50 years. However, a number of years ago Bill worried he wouldn’t be able to continue with his volunteer work when he started to get breathless walking uphill, until an aortic heart valve replacement in 2015 made sure he was back on the mountains feeling better than ever.

It was a chance query to his GP to see a rheumatologist that led to an eventual diagnosis of heart valve disease for 53 year old Mike Addelman of Manchester. An avid cyclist and runner, the diagnosis was certainly a surprise but Mike is grateful for a lucky visit to have his spine checked and the doctor’s keen sense that something wasn’t right.

Aged 53, Mike was training for Insanity, an intensive fitness programme, as he had been doing for the past few years. Ordinarily, he has a low resting heart rate which will usually settle in a predictable way following a work out. However, one session near Christmas 2014 it settled just under 70, which struck him as unusual. He’d always monitored his heart rate closely, and explained to his wife he felt he was running at 85%. He began to get breathless, and climbing the stairs required extra effort. Something was clearly not right.

​Howard Lockett has lived a full life, but has experienced some ups and downs when has come to his health. Having been diagnosed with Hodgkins Disease (lymphatic cancer) thirty years ago, Howard was surprised when he found out that he was up against another life threatening disease later in his life at the age of 63. This time around it was heart valve disease, aortic stenosis to be exact, and treatment would be needed as soon as possible.

In 2010, Brenda Walker now 84, was suffering from all of the red flag symptoms of valve disease, breathlessness, tiredness and swollen ankles. After a visit to her doctor did not result in a stethoscope exam, she took matters into her own hands and sought out a second opinion from a cardiologist. It was a good decision, Brenda was told she had aortic stenosis and that it needed to be treated.