Stories

​Breda Sullivan struggled for years to convince clinicians that something was wrong until a simple stethoscope check led to a life-saving diagnosis. Born with congenital heart disease yet totally unaware of the condition or its symptoms, Breda could have died within six months without treatment.

Having lived with a heart murmur that was the result of rheumatic fever as a child, Marina never noticed it having an effect on her life until she reached her 50s. It wasn’t until a visit to her GP with high blood pressure that she found out she had aortic stenosis (AS). Marina has since had treatment for her AS and is now back to work at her busy job as a Midwife. This is her story.

Gareth Hopkins was diagnosed with severe aortic stenosis in February 2017. Two months later, Gareth believed he was going in for open heart surgery to receive a valve replacement only to find that when he awoke, they could not perform the surgery because his valve was too damaged. Cue Dave Smith, Interventional Cardiologist, Morriston Hospital, who informed Gareth that he was the perfect candidate for a TAVI.

​James McElwee, from King’s Health, is a retired Printer and Voluntary International Rescue worker. In 2004, aged 60, he underwent valve replacement surgery for aortic stenosis and in 2015 had his aortic valve replaced again. He has written this account to help more people to become aware of this condition, and help reassure valve disease patients of the positive outcomes of treatment.

​In 2006, Patricia had a brief problem with heart palpitations, which acted as a red flag and prompted her to go and see her GP for a stethoscope check. 10 years on, she explains her story and why a “stitch in time” really did apply to her valve disease!

​Gerry Kijak is 63 and lives in Solihull with his wife. In February 2016, he underwent double heart bypass surgery and had an aortic valve replacement due to heart valve disease. His valve disease story is especially poignant and shows just how important it is to not ignore your symptoms.

Sandra initially dismissed her symptoms of heart valve disease as a sign she was getting older. After falling ill at work, she visited her GP and upon further investigation was told she had heart valve disease. She explains her valve disease symptoms and diagnosis below.

​Guy was only 35 when diagnosed with heart valve disease after experiencing dizzy spells and breathlessness. After 6 years of regular monitoring, his mild stenosis developed into a severe condition and he received a mechanical valve. Below, he tells us about his experience of heart valve disease and how early diagnosis helped him regain his busy life back.