Pat spoke to Gianluca Lucchese about the role of patients in the future of heart valve disease care and why patients voices' were important.
“My voice, as well as the voices of other patients, need to be at the forefront of the future of heart valve disease. Fundamentally, it is our voices which should inform the narrative”. Read what Pat Khan thinks of the patients’ voice in treatment options. http://ow.ly/82cF50wCFB3
Heart Valve Voice Patient Advocate, Ian Berry, challenged himself to cycle 25 miles for 25 days to raise awareness of heart valve disease. After finishing the challenge on the one year anniversary of his treatment, Ian met up with our CEO Wil Woan and his clinician, Mr Cesare Quattro to discuss his challenge and his recovery.
We were delighted to have Katie Sheen, from Soul Nutrition, join us to deliver her "Discovering Mindfulness' workshop.
Our children’s book read by Chris Geere teaches us to think about our older relatives and get their hearts listened to.
As part of the European Awareness Week, Heart Valve Voice hosted an educational webinar for older people to learn more about heart valve disease.
At the SCTS Annual Meeting Joseph Zacharias, Cardiothoracic Surgeon from Blackpool Teaching Hospitals tells us about a patient who at the age of 92 had valve disease treatment and soon after accomplished his goal and completed his book.
Cardiac surgeon Michael Sabetai from Guy's and St Thomas' Hospital spoke to us at the SCTS Annual Meeting this past weekend and told us an interesting patient memory about an avid weight lifter and their desire to get back in the gym after valve disease treatment.
Max Codispoti, Cardiac Surgeon from Barts Health explains how rewarding it was to see one of his patients who received a mitral valve repair getting back to full health and back to doing one of their favourite, surprising hobbies while at the SCTS Annual Meeting
Bil Kirmani, consultant cardiac surgeon from Liverpool Heart and Chest Hospital shared one of his fondest patient memories with us while we were at the SCTS annual meeting this past weekend. The story he shares is a great example of a valve patient getting back to their lives and important work that not only gives back to society but helps others.
Heart valve disease can impact families in different ways here’s cardiac surgeon Inderpaul Birdi from Basildon University Hospital who we saw at the SCTS Annual Meeting, he told us about two different sets of twins who each had valve disease and all received treatment and how they supported each other though it.
Olaf Wendler, Consultant Cardiothoracic Surgeon, from King's College Hospital shared a favourite patient memory with us at the SCTS Annual meeting that involved a pregnant patient who underwent a successful valve disease treatment and who later gave her baby boy the middle name Olaf!
Betsy Evans, Consultant Cardiac Surgeon from Leeds Teaching Hospitals shared a fond patient memory with us this past weekend at the SCTS Annual Meeting. Her story involved a patient who was desperate to make it out of surgery for her golden wedding anniversary
While at the SCTS Annual Meeting we’ve been speaking with some of the clinicians and asking them to share their favourite patient memory and to tell us about the quality of life their patients enjoy after treatment. We will be sharing these with you over the course of the week. Here’s Graham Cooper President of SCTS and cardiac surgeon at Sheffield Teaching Hospitals.