HVV Cycle Ride 2018
2018 Heart Valve Voice Cycle Ride from London to Paris
Tuesday 8th May 2018
With the success of last years cycle ride, the team from Heart Valve Voice are about to embark on their second awareness raising cycle ride one year later. Team members from UK charity will be cycling from London to Paris to help raise awareness of heart valve disease and the need for improved diagnosis and access to treatment. The cycle team will be made up of HVV Chief Executive Wil Woan and 13 clinicians and patients . The journey will begin in London on 21 May and finish with a ride up to the stage at the EuroPCR Conference in Paris on 23 May.
Heart Valve Disease affects over 1.5 million people over the age of 65 in the UK, according to a 2016 Heart Valve Disease Survey. Awareness of this disease is very low in the UK, despite its prevalence, with an average of 94% of people over the age of 60 being unaware of what aortic stenosis (the most common heart valve disease) is. The disease is easily detectable and diagnosis can involve a simple stethoscope exam from a primary care practitioner.
“We are excited to be holding this brilliant event again this year,” said Wil Woan, Heart Valve Voice CEO. “What’s even more exciting is that we have more patients involved this year which helps to strengthen our message that with timely treatment many patients with valve disease can regain an improved quality of life and accomplish things they never dreamed of before!”
Patients Pat Khan, Marina McGrath, and Gerry Kijak will be setting out with us on the cycle ride to show that valve disease hasn’t stopped them from living their best life. The cycle ride this year will feature two teams to allow the cyclists to go at their own pace and cycle only as much as they feel they can do.
“I couldn’t be more thrilled to be participating in the cycle ride with Heart Valve Voice this year,” said Marina McGrath, Heart Valve Voice Patient Action Group member and former valve disease patient. “I followed Pat’s journey last year and it was so inspiring. I am hoping that when other people see Pat, Gerry and I cycling along with the team, it will inspire them to get checked or to encourage their family or friends to speak to their primary care practitioners about getting checked for valve disease. Treatment saved my life and look at me now!”
In addition to raising awareness of valve disease the cycle ride will also promote the first ever European Heart Valve Disease Awareness day. The Awareness day brings together countries from across Europe to help spread the message that valve disease effects a large number of people from Europe and more needs to be done to raise awareness.
While there have been many advancements in the treatment of this disease the unfortunate fact is that far too many people are not being diagnosed and treated early enough. It is anticipated that the number of people over the age of 65 with the condition will increase from 1.5 million in 2015 to 3.3 million by 2056, representing a 122% increase according to data obtained as part of the OxVALVE Study. As such, it is important that policy makers and clinicians plan and deliver the necessary provisions to provide the essential health services for the treatment and management of the rapidly increasing numbers of heart valve disease patients.
“Events like the London to Paris cycle ride serve as a great way to raise awareness of a disease that, while extremely common, is relatively unknown by a large percentage of our population,” said Keith Pearce Heart Valve Voice Cycle Ride team member, Consultant Cardiac Physiologist and President British Society of Echocardiography. “It is so important that the general public, particularly those over the age of 55 are aware of the symptoms involved with valvular heart disease and that they are having their hearts listened to and, if needed, being referred for an echocardiogram so that they can be diagnosed/treated/managed in a timely way. With the diagnosis confirmed on echocardiography the clinician can ensure patients receive the right treatment at the right time, and therefore improving the optimal outcome for patients.”
The last stop for the cycle tour will be up on the main stage at the EuroPCR conference which is the annual meeting of the European Association of Percutaneous Cardiovascular Interventions (EAPCI) and a world-leading course in Interventional Cardiovascular Medicine that hosts cardiac experts from all over the globe. This will be the ideal place to finish such an amazing feat for these patients and clinicians who will be able to share their experience and gain the support from key clinicians from across the continent.