Patient Stories
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Neil Driver’s Heart Valve Disease Story
In 2019, the father of two and grandfather of four, Neil Driver, was diagnosed with aortic stenosis after visiting his GP with swollen ankles. Five years later, Neil’s condition had worsened, and he received his life-saving valve replacement. Now, Neil is looking forward to the rest of his life with his family, symptom-free. This is his story: "My story started in 2019 when I went to my GP because of swollen ankles. The GP gave me a once-over and mentioned there might be something wrong with my heart. I found it hard to believe — how could swollen ankles be related [...]
John Wolfenden’s TAVI Story
In 2020, John Wolfenden started to get increasingly breathless when walking, but it wasn't until a family emergency that John sought help with his symptoms. John's GP listened to his heart and heard a murmur, and just months later, John was being treated for aortic stenosis. This is his story. My GP diagnosed a fluttering aortic valve in 2020 after listening to my heart. I went to him as I found I was getting increasingly out of breath, which I thought was a lung problem. I had no idea I had a heart valve issue and had never heard of heart valve disease. [...]
Brenda Walker – 12 Years On
In 2011, Brenda Walker was treated for severe aortic stenosis. Now, at nearly 90 years old, Brenda reflects on all that she has achieved since her life-saving treatment, and her work as an advocate for heart valve disease patents around the world. 12 years ago, we lived in Leicestershire and I was in the middle of studying for a PhD at Loughborough University that I had started in Dec 2009. I was then 75, very active and in good health apart from some asthma. During the spring and early summer of 2011, when I was travelling around giving papers at [...]
Patricia Walker’s TAVI Story
In 2021, 85-year-old, Patricia, began feeling breathless while out walking, but was hiding the symptoms from her loved ones. Knowing something was up, she went to the doctor and further investigation found she had aortic stenosis. Now, thanks to the brilliant team at Leeds Teaching Hospital, she has a "new life" - and is enjoying every minute of it. This is her story. "I started to realise something was up when I was walking to the shop, and I would need to sit down. I used to pretend to talk on my phone because I didn’t want anyone to think [...]
Mary Kernick’s Heart Valve Disease Story
This year, to mark the 20th Anniversary of the first TAVI we will be sharing twenty TAVI stories - one for every year the procedure has been being performed. 85-year-old, Mary Kernick, was diagnosed with heart valve disease while having checks for suspected gall stones. After discussions with her clinician, they decided a TAVI was the best treatment option for her. This is her valve disease story. "My story started in November 2019 I was admitted to the General Hospital with suspected infected gall stones, and during the various tests a heart murmur was discovered and it was recommended that I [...]
Martyn O’Connors Covid-19 Valve Disease Story
Martyn O'Connor first had valve disease surgery to replace his aortic valve 11 years ago. After his valve began to deteriorate, urgent intervention was required, and thanks to the excellent team at Morriston Hospital, Swansea, he was able to receive his life-saving treatment, and was discharged in a matter of days. This is his valve disease story: "This part of my story starts about 11 years ago when I had open-heart surgery to replace my aortic valve. Since then, I've obviously always been aware of heart valve disease, but it had never really impacted my life after my original surgery. [...]
Peter Cobley: My COVID19 Story
While the outbreak of COVID-19 has placed unprecedented pressure on the NHS, Public Health England's admissions data points towards a concerning trend of people avoiding hospitals out of fear of contracting COVID-19. While concerns around COVID-19 are understandable, by not receiving urgent treatments, patients may be putting their lives at risk. Peter Cobley was treated by the team at Kings College Hospital, London during the outbreak. After receiving an echocardiogram, Peter was diagnosed with aortic stenosis and told that he needed urgent intervention. Before being diagnosed, Peter had experienced symptoms of breathlessness and dizziness, but after attributing them to signs [...]
Lewis Benn: My COVID19 Story
At the very height of the COVID-19 outbreak, retired postman and hospital worker, Lewis Benn, was awaiting treatment for severe aortic stenosis. Having been told he would have to wait till September, Lewis feared for his life, but thanks to the excellent work of Dr Dan Blackman and the team at Leeds General Infirmary, Lewis was admitted, treated and discharged over the course of just three days. Here, is his story: “I started feeling very short of breath and I was having trouble walking up the stairs. I wasn’t feeling good at all, I couldn’t breath properly and could hardly [...]
Jessie Moss: My COVID19 Story
83-year-old retired office worker, Jessie Moss, was treated for severe aortic stenosis at the very height of the COVID-19 outbreak. Thanks to Professor Newby and the team in Edinburgh, and with the help of minimally invasive treatment, Jessie was able to receive the treatment she urgently required, and can now focus on her recovery and getting back out on the bowls green. Here, is her story: “I was flight really tight in the chest last year when I was playing bowls, and then gradually I started to get short of breath and found myself having to sit and watch instead [...]
George Clague: My treatment during the COVID19 crisis story
At the very height of the country’s response to the COVID19 outbreak, George became unwell and was rushed to hospital unaware that the heart valve disease symptoms he was suffering were life-threatening. Retired factory worker George Clague has lived in the beautiful shadow of the Lake District for his entire life. In his youth, he would spend his time camping in his favourite spots and later in life, he and his wife would spend the summer wandering along the trails “It’s really hard to say when I first realised something was up. Part of me thinks it was when my [...]