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HVV Cycle Ride to EuroPCR Conference

Thursday 13th April 2017

On the 15-17 May the Heart Valve Voice cycle team took part in an epic adventure cycling from Guy's & St Thomas' Hospital in London to the EuroPCR conference in Paris. The team made up of clinicians, patient representatives and our patient ambassador Pat Khan, cycled over 200 miles to raise awareness about heart valve disease. It was an amazing adventure and we can't wait to do it again next year!

Senior Ambassador for the ride is Phil MacCarthy, Clinical Director of Cardiovascular Services, King's College Hospital
"Early diagnosis of heart valve disease can actually help to save costs and lessen the burden on the NHS in the longer term by keeping patients out of hospital and living healthy, independent lives. This ride can help amplify this message”

Wil Woan, HVV CEO
A lack of public awareness of the signs and symptoms of heart valve disease and the severity of the condition has contributed to under-diagnosis of heart valve disease. I hope that with this cycle ride we are able to raise awareness of the importance of not ignoring the symptoms of heart valve disease and having your heart regularly checked”

Pat Khan, HVV Patient Ambassador and heart valve disease survivor
I’m really honoured to be representing my fellow heart valve disease patients on this cycle tour. If it weren’t for my heart valve surgery and the treatment I received, I wouldn’t be here at all, let alone be participating in a cycle ride to France!”

Dave Smith, Consultant Cardiologist, Morriston Hospital, Swansea
Heart Valve disease is associated with older people, in Wales 11.7% of the whole population are over 85 years of age compared to the UK average of 5% and yet we have poor public awareness, poor access to treatment and therefore long waiting lists and times. I’ll be bringing my stethoscope along with me to highlight the importance of regular check ups”

Anwen Jenkins, Cardiac Nurse, Morriston Hospital, Swansea
“I see patients all the time, some are often seeing us at the hospital too late so I want to raise awareness of the symptoms so that they go and see our brilliant primary care colleagues earlier”

Alex Gannaway, Clinical Nurse Specialist, Royal Sussex County Hospital, Brighton
“Heart Valve Disease is a very treatable disease if we diagnose early. I’m working with Heart Valve Voice to promote the disease and all the amazing healthcare professionals working with valve patients across the UK.”

Ishtiaq M Ahmed, Consultant Cardiac Surgeon, Royal Sussex County Hospital, Brighton
“Heart valve disease is a growing concern in the UK, with prevalence expected to increase significantly in the next few years, yet levels of awareness and diagnosis still remain low. This ride will raise awareness of the signs and symptoms of heart valve disease and the severity of the condition”

Neil Roberts, Consultant Cardiac Surgeon, The Barts Heart Centre, St Bartholemews Hospital, London
Through Heart Valve Voice’s work with patients, clinicians, policy makers and the general public they've made great progress over the past 12 months. However, much more needs to be done to ensure people living with heart valve disease receive a timely diagnosis and can access effective and appropriate treatment for the condition. This ride is a brilliant opportunity to promote the issues that still effect people with heart valve disease.”

Stuart Grant, Specialist Trainee Cardiothoracic Surgery, Manchester Royal Infirmary, Manchester
I’ve done a number of events with Heart Valve Voice and have seen first hand the impact they have in raising awareness of the disease to the public. My patients are thrilled I’m taking part and will be cheering me on to Paris!”

Helen Munday, Trust Matron, Papworth Hospital, Cambridge
“I love helping valve disease patients, although much more needs to be done to ensure people living with the disease receive a timely diagnosis via a simple stethoscope check from their doctor. I’m thrilled to be supporting Heart Valve Voice to improve the quality and longevity of people’s lives.”

Adrian Carrol, Patient Representative, Cheshire
Quote: “I’m thrilled to be supporting Pat and the fantastic clinicians on this ride. Sadly my grandma , Lydia Monk, passed away from valve disease and it is hugely important to me and my family that we raise awareness of the disease so people get diagnosed earlier and get the right treatment at the right time”